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I want to wish everyone a Merry Christmas & Happy Holidays! I pray for all those families of Cherubs on Earth & in Heaven! My heart aches to see the numbers of babies born with CDH across the world. Keep faith, hope & pray because miracles do happen!
Wow! So much has happend since I was last on here. I had to return to work in February, which wasn't an easy decision but one that was for the best as the time. Scott resigned from work so he could stay home with Josie. Another decision that wasn't easy to make. Somehow we managed and made it through an ever changing year. We're praying 2009 is our year. I am not able to accuratly bring you up to date without my journal or calender in front of me so I will just touch on how Josie ...
In 2005, I rekindled with my high school sweetheart, Scott, after 10 long years of no contact & many dead end relationships. We arrainged to meet Christmas in New York while I was home for the holidays. It was love at first site. After a few months of a long distant relationship, we decided that we had to be together. Me being a single mother of Justin (11 yrs. old) knew that I couldn't pick up & run off to N.Y. Scott was able to transfer his job here to K.C. so he moved from N.Y. ...
Josie will be 4 months old on the 13th. She has been home since December 5, 2007. We've been to the special care clinic, surgery clinic and the pediatrican a couple times each now. Josie is doing really well. At the time of discharge she weighed 15 lbs. 12 oz. She lost 4 oz. the first couple weeks home but has now gained them back plus two. Josie gets all her feedings through an NG tube. Since she was on the ventilator since birth she has never taken food orally. The surgeons are not comfortable ...