Stay Connected
Keep your family and friends updated on your cherub's progress at a site that can also give them information on CDH and advice on how to help you through this roller coaster.
Just testing out the blogs.
CHERUBS is almost 14 yrs old. 14 years old. Wow! We have achieved so much over the years. Some parents remember what it was like to have a CDH child 14 yrs ago - there was NO SUPPORT. No information. No organizations. No internet. No library books that explained things. No help from any other organization for birth defects. No nothing. You were alone, without information, without support, trying to stay afloat in all the CDH lingo and stress. When my son was born the doctors gave ...
Why is the CDH Awareness Ribbon blue and pink and yellow with clouds you ask? Several years ago on our old listserv, members of CHERUBS (then the only CDH group on the internet) talked about having an awareness ribbon. We batted the idea back and forth and didn't go much further with it because it every color was already taken and it seemed a bit tacky to take a color that already belonged to other causes - we didn't want to take away from their hard work promoting their cause with their ribbon. ...
No One Knows.... by Dawn Williamson No one knows what it's like to be diagnosed with Congenital Diaphragmatic Hernia and have your world shatter - unless they have been there themselves. No one knows what it's like to watch your baby struggle to breathe - unless they have been there themselves. No one knows what it's like to cry yourself to sleep at night wondering if today was the last day you had with your child and the hospital could call at ...