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Thread: Lizzy's Walk For Cherubs!

  1. 03-03-2015, 10:14 PM #1
    AmandaPlakholm
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    Lizzy's Walk For Cherubs!

    We will be holding our walk for Cherubs to raise awareness and money again this year. Liz and I were talking the other day and we want to honor Cherubs who have grown their wings. We are planning on writing the Cherubs names on a tag with Cherubs colours. If you want your Cherub honored you can message me here or PM me if you prefer. I want all the participants in the walk to realize that to many families lose their babies ànd by raising money they are helping with research. if interested you can share your Cherubs birthday and angelversary, I don't think anyone realizes how different ever Cherubs journey is.
    Amanda Mother of Liz born 09/09/2002 with LCDH,Emily 05/27/2005. Liz was diagnosed at 12 weeks in uetro 90 percent of left diaphragm missing. Gortex patch put in at 3 days old. Ever abdominal organ other then kidneys herniated. Born at 38 weeks, 6 lbs 11oz. Born in Hamilton ON. Hospitalized for 6 weeks. Rehirniated at age 6 and 3 surgeries age 10 almost lost my Cherub again. Duplication cysts on her stomach. Reflux and on going GI issues.
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  2. 03-04-2015, 03:47 PM #2
    Chris and TracyMeats
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    Love to see Liz dong her walk again! She is one amazing girl and what she does every year for her walk, is wonderful....so glad she is doing it again.

    Make sure you are talking with fundraising too, for they will send you out a fundraising kit, help answer questions, and get the event page set up for you....fundraising@cherubs-cdh.org.
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org
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  3. 03-04-2015, 04:57 PM #3
    LHenderson
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    That sounds like an amazing idea! I hope it goes over as well as you plan.
    Laura Henderson
    Missouri State Representative
    Mom to Lucie, LCDH survivor
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  4. 03-04-2015, 10:40 PM #4
    NicolleColvin
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    Amanda will you include Kasey 11.16.08-12.20.08
    Thank you!
    Nicolle Colvin Mommy to Kasey James 11.16.08-12.19.08 Colorado Representative colorado.cherubs@gmail.com http://cherubscolorado.blogspot.com/
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  5. 03-10-2015, 06:33 PM #5
    MonicaForquer
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    That's so great! Lizzie is amazing! Can you please include Samuel Forquer 8/20/14-9/1/14?
    Monica- Mom of Sammy 8/20/14-9/1/14. Sammy is our first child. LCDH diagnosed at 19 weeks. ECMO, dialysis, EEG, two circuit changes for ECMO. Sammy was surrounded by family and knew he was loved. He looked exactly like my husband! Missing my little Sammy every day.
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  6. 03-10-2015, 08:47 PM #6
    AmandaPlakholm
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    Thanks Tracy and Laura we are pretty excited! Monica and Nicole we make sure your Cherubs information will be added. Hoping to get some news coverage this year again!
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  7. 03-14-2015, 09:32 PM #7
    MichelleC
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    Hi Amanda. Your and Lizzie's strength amazes me. We would be honoured if you would include Jack in your balloon release 22/7/2014-30/07/2014.
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  8. 03-17-2015, 02:51 PM #8
    AmandaPlakholm
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    Michelle, I will add a balloon for Jack. Hugs for you and your family. I am going to post pictures of the balloon release.
    Amanda Mother of Liz born 09/09/2002 with LCDH,Emily 05/27/2005. Liz was diagnosed at 12 weeks in uetro 90 percent of left diaphragm missing. Gortex patch put in at 3 days old. Ever abdominal organ other then kidneys herniated. Born at 38 weeks, 6 lbs 11oz. Born in Hamilton ON. Hospitalized for 6 weeks. Rehirniated at age 6 and 3 surgeries age 10 almost lost my Cherub again. Duplication cysts on her stomach. Reflux and on going GI issues.
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  9. 05-23-2015, 08:45 AM #9
    AmandaPlakholm
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    I've never said I hate CDH before because it feels like it's a part of my daughter and that wouldn't be right. I now realize after starting to write down all these angels names, I do hate CDH and what it does to families. It's a part of my daughters life and has impacted who she is but I hate the suffering it causes babies, children, adults and whole families. I will be saying a praying for all of these angels and their families.
    Amanda Mother of Liz born 09/09/2002 with LCDH,Emily 05/27/2005. Liz was diagnosed at 12 weeks in uetro 90 percent of left diaphragm missing. Gortex patch put in at 3 days old. Ever abdominal organ other then kidneys herniated. Born at 38 weeks, 6 lbs 11oz. Born in Hamilton ON. Hospitalized for 6 weeks. Rehirniated at age 6 and 3 surgeries age 10 almost lost my Cherub again. Duplication cysts on her stomach. Reflux and on going GI issues.
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  10. 06-24-2015, 07:41 PM #10
    AmandaPlakholm
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    The walk went well and we honored 20 Cherub angels with the balloon release. I'm going to try and attach a few pictures here. If I can't figure it out I'll add them to my album.
    Amanda Mother of Liz born 09/09/2002 with LCDH,Emily 05/27/2005. Liz was diagnosed at 12 weeks in uetro 90 percent of left diaphragm missing. Gortex patch put in at 3 days old. Ever abdominal organ other then kidneys herniated. Born at 38 weeks, 6 lbs 11oz. Born in Hamilton ON. Hospitalized for 6 weeks. Rehirniated at age 6 and 3 surgeries age 10 almost lost my Cherub again. Duplication cysts on her stomach. Reflux and on going GI issues.
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