- At this time last year . . . (6 replies)
- Just wanted to share my little ones accomplishment! (8 replies)
- Quinn is going to make it! (12 replies)
- General edema (8 replies)
- What could this mean?? (30 replies)
- At MGH in March of 2009 (0 replies)
- Pacifier? (7 replies)
- Left side weakness (10 replies)
- Reflux in older children (3 replies)
- Please don't think I am nuts (15 replies)
- Jaxon's turning ONE!!!!! (9 replies)
- Kiyari Juliet is TWO!! (5 replies)
- reflux medicine-question? (20 replies)
- herniated lung- any help please? (12 replies)
- Work Place Not Understanding (10 replies)
- Am I crazy?? (12 replies)
- One year ago today... (6 replies)
- 1st Birthday - flameless candle? (8 replies)
- Disagrements with the Surgen (4 replies)
- My RCDH survivor...there is HOPE! (6 replies)
- Should I be worried about Tummy pains ? (12 replies)
- another quick update on sunshine Lewis (4 replies)
- Update on Dakota's check up with surgeon (7 replies)
- paradoxical breathing (0 replies)
- Indoor swimming pool? (9 replies)
- Braden is coughing...AGAIN! (9 replies)
- update on quinn. we're home! (18 replies)
- Slow weight gain??? (12 replies)
- Baer still has pnuemonia (13 replies)
- Overdue Update on Lewis (8 replies)
- first foods (9 replies)
- Keeping Secrets (19 replies)
- The mighty Quinn is born!!! (17 replies)
- My son's story (14 replies)
- Oxygen Only At Night (10 replies)
- DHREAMS Study? (11 replies)
- Feeding problems (22 replies)
- Ericka's 1st Birthday! (10 replies)
- Homeade Blended Formula in G-tube? Good Idea??? (4 replies)
- Help, need info on why smoking around Jax is bad!!! (6 replies)
- Adrian update (5 replies)
- Developmental Delays (11 replies)
- Reherniation (5 replies)
- Whose child has had the Laproscopic Repair? (13 replies)
- updated pics of Sofia (1 replies)
- I'm back... (2 replies)
- Hyperal Causes Galstones Even In Babies (5 replies)
- My poor Jaxon is in the hospital. (23 replies)
- sucking reflex (4 replies)
- Cora (8 replies)
- looking for a formula to add to breastmilk for more calories (2 replies)
- Lung Function test? (3 replies)
- Hello (31 replies)
- Braden's 2 yr. check up (12 replies)
- Can I pick your brains loose patch or hole? (12 replies)
- feeding,reflux and gagging (5 replies)
- Help Pls! RSV Shot denied! (18 replies)
- Need ideas for high calorie foods (13 replies)
- our Sunshine Warrior Lewis is HOME :) (10 replies)
- Missing everyon (21 replies)
- How do you meet.... (7 replies)
- My little guy (6 replies)
- Update on my cherub Savannah (24 replies)
- Not on here much, But I do think of you all! (3 replies)
- Created a blog for Jonah (1 replies)
- Interstital Lung Disease (0 replies)
- Need advice - bottle feeding (5 replies)
- Pediasure? (6 replies)
- Just a little update. (17 replies)
- Pulmonary Hypertension (10 replies)
- Happy 1st Birthday Nayeli Faith! (10 replies)
- Pulmonary function tests (11 replies)
- Elinor is coming home!!! (36 replies)
- swine flu vaccine for your cherub (61 replies)
- I can't seem to get her to eat. (5 replies)
- Feeding (7 replies)
- looking for advice (17 replies)
- Braden's 18 month check up (4 replies)
- My introduction! (4 replies)
- Clodaghs gagging and severe tummy pains, please help (4 replies)
- Our Own Little Cherub Survivor - Riley Koen (12 replies)
- Juan's 6 month check up. (28 replies)
- Second winter (7 replies)
- worried (26 replies)
- Periactin (11 replies)
- Surgery Date Set (16 replies)
- Reglan/Prevacid/Zantac (16 replies)
- early intervention evaluation tomorrow (28 replies)
- Did/Does your tube fed baby act hungry?? (7 replies)
- Proof that things happen for a reason ... (11 replies)
- Prevacid for reflux (6 replies)
- Weaning from continuous feeds? (4 replies)
- Results from Baer's GI study ~ Need lots of help! (17 replies)
- Update on Jonah (8 replies)
- Our Up-Coming Family CDH genetic study day (5 replies)
- So proud of my little princess (15 replies)
- Rollercoaster Ride (4 replies)
- Help, trying to stick with NG tube (7 replies)
- Got good news on Kiyari (11 replies)
- About our cherub. (7 replies)
- How to parent the non-cherub (10 replies)
- What NG Equipment Works For You? (5 replies)
- getting nervous about traveling with Braden (18 replies)
- Bad Circulation? (26 replies)
- feeding clinic appointment-HELP! (26 replies)
- Weston's turning ONE (12 replies)
- Fresh start~!!! (27 replies)
- finally walking...:) (13 replies)
- Excessive Coughing (26 replies)
- Gaining weight issues and throwing up (13 replies)
- Re-herniation - Worried (12 replies)
- Braden's 15 month check (24 replies)
- Celebrating a Year of Miracles (27 replies)
- Growth Hormone Replacement Therapy (36 replies)
- Follow up appointment for PHP Clinic @ CHOP (6 replies)
- picture of my cherub (9 replies)
- meet other parents of surviving cherubs (7 replies)
- Elevated Diapghram (20 replies)
- Ordering CDH Awareness Bracelets (13 replies)
- Adrian's Birthday Pics (23 replies)
- Worrying about Ericka being "confused." (7 replies)
- Dealing with GI doctor (4 replies)
- Possible Reherniation or Stretching of the Patch? (21 replies)
- FDA approves new drug for Pulmonary Hypertension (1 replies)
- Going home on oxygen (12 replies)
- Worried about Weston (13 replies)
- Any other Southwest Florida Parents? (0 replies)
- Ng tube to G-tube (33 replies)
- When can I stop being scared? (9 replies)
- Birthday for Elijah (7 replies)
- Question About Regurgitation (1 replies)
- Reflux? (27 replies)
- Nobody could've prepared me for this... (299 replies)
- Update on Braden (17 replies)
- experience with not eating before surgery? (6 replies)
- New Here With Questions (72 replies)
- not gaining enough weight (23 replies)
- Ending isolation (9 replies)
- UGH Football (11 replies)
- How do you "parent" a miracle baby?? (27 replies)
- Any Cincinnati Families Out there? (5 replies)
- Update on Weston (10 replies)
- Weston's in the hospital with RSV (7 replies)
- Braden's 1 year check up (16 replies)
- We're back...... LONG STORY (12 replies)
- Braden's birthday pic (14 replies)
- have any of your cherubs had croup? (12 replies)
- Braden is headed to CHOP on 3/3 (28 replies)
- John Michael's CDH Journey video (6 replies)
- Did anyone deliver in Cincinnati or University of Michigan? (2 replies)
- Chronic Bronchitus-anyone else had this problem? (4 replies)
- Transition from J to G tube (7 replies)
- Claire update (6 replies)
- Chewing foods (4 replies)
- Adam and Esophagus question (10 replies)
- I'VE MISSED SO MUCH!! (16 replies)
- Very Good News (29 replies)
- Tracleer? (7 replies)
- Can You Say "Diaphragmatic Hernia"? (12 replies)
- Ian Meats' CDH video - journey in pictures (24 replies)
- Explaining CDH (22 replies)
- HAPPY BIRTYHDAY NICOLE TENNYSON!! (26 replies)
- Boston CDH clinic (10 replies)
- Nayeli's First FU at UCSF (4 replies)
- Question about CHERUBS talking and breathing (3 replies)
- Baer got a Haircut, he looks like a little man! (15 replies)
- My special Christmas gift (89 replies)
- Braden needs to gain weight! (90 replies)
- special christmas (13 replies)
- Braden's 1st haircut (16 replies)
- Problems with the battle (30 replies)
- Its almost here (25 replies)
- Nayeli (15 replies)
- More on our precious daughter Isabel! Five months old! (6 replies)
- Weston was in hopsital with pneumoina (8 replies)
- More on Weston (3 replies)
- Get Weston to take the bottle (13 replies)
- learning to crawl (24 replies)
- Happy Birthday Par! (3 replies)
- Duke vs. Cincinnati (1 replies)
- How did you pay for medical care? (8 replies)
- so Grateful!! (7 replies)
- Adrian's baptism photos (13 replies)
- Follow up CDH clinic (14 replies)
- Any Suggestions...Oral Aversion (10 replies)
- What is synagis (palivizumab)? (97 replies)
- Nicole is walking!!! (24 replies)
- RSV Season already? (24 replies)
- Baer at the Pumpkin Patch (35 replies)
- Braden's video (5 replies)
- pulmonary hypertension (9 replies)
- Juan Pablo's 4th surgeon appt. (23 replies)
- Please pray for Isabel Ruth (23 replies)
- Juan Pablo walking (20 replies)
- Hey (4 replies)
- Update on Henry (82 replies)
- Intestinal Issues and older CDH kids (13 replies)
- Ayda is 1 year old tomorrow (10 replies)
- Update on baby Angelina's 4th Surgery (19 replies)
- 9 months! (19 replies)
- Australian gathering?? (11 replies)
- How is Liam? (49 replies)
- PLZ MEET MY MIRACLE, SAVANNA SAIGE (27 replies)
- Adrian (47 replies)
- How is Baby Louis? (98 replies)
- Good visit (8 replies)
- ARGH! (14 replies)
- Your Cherub and Preschool (19 replies)
- Happy Birthday, Kristin (11 replies)
- 4th Surgery for Angelina (21 replies)
- Ciao a tutti (1 replies)
- Caden started preschool! (7 replies)
- Adrian is home (27 replies)
- Baer has a virus? (100 replies)
- Maternity leave is over.... (7 replies)
- what / when did you tell your cherub about CDH? (20 replies)
- 14 Month Old Check Up (16 replies)
- Hi Shanell (3 replies)
- A huge milestone!!! (20 replies)
- Bottle feeding a breastfed baby (13 replies)
- over inflated lungs on x ray? (3 replies)
- Talking with other Cherubs (3 replies)
- Cole Asthma (33 replies)
- Gabriel Athan Update (11 replies)
- The 1st birthday (24 replies)
- Adrian up Date (5 replies)
- Toni is out off hospital 1yr on Sunday (9 replies)
- Physical Limitations of Your CDH child (71 replies)
- survivor-35 days on ECMO (9 replies)
- Feeding Issues (26 replies)
- Off To Baltimore (17 replies)
- no dr's appts!!! (17 replies)
- enough is enough (41 replies)
- Why is he doing this? (42 replies)
- When did your Cherub get to come home? (31 replies)
- Let's see if this works (10 replies)
- Am i the only one? (41 replies)
- Duocal (0 replies)
- Trouble Transitioning to solids... (10 replies)
- Nissen...What are your thoughts? (13 replies)
- Michael's latest echo (4 replies)
- gagging and reching (20 replies)
- Pics of Happy Cherubs (62 replies)
- I LOVE my daycare (8 replies)
- New meds (8 replies)
- Any babies having / had a lung function test? (3 replies)
- help with reflux (again!) (52 replies)
- Big Appointment Today (25 replies)
- Intensive Feeding Therapy (51 replies)
- Braden's appointments (12 replies)