- More Advice From Other Parents
- Dealing With The Physical Changes in Your Child
- Keeping A Diary
- Finding The Right Hospital & Doctors
- Sources of Local Support
- Advice For Family And Friends
- Books to Read
- Music To Listen To
- "I Wish Someone Would Have Told Me!"
- Welcome
- Bryston Spohr, Born 4/12/05
- 2003 Cherub
- Jackson McKay
- Hi everyone!
- Born in 2002
- Born in 2002
- Eating disorder due to Reflux
- Adam and Prevacid
- Administering Medicine?
- Chronic Lung Disease
- anyone try the "Autism diet"
- Whatch gonna be for Halloween?
- Feeding problems
- Welcome to Parents of Survivors
- sweating while on the pump
- Meal Time Mayhem
- Manomtery test
- Feeding at night on pump
- Adam's 15 Month Check-up
- My angel Kayla
- Anyone from NY
- Virginia/Washington doctors
- Flying with CDH childred
- Adam has Good News
- High Calorie Food Recipes
- LaneyKate's Moving and Groovin
- Stomach Bug
- Jesse and Prevacid
- Feeding Coordinator appt
- So thankful to be able to post here
- cherub on ecmo mom needs to talk
- Swallowing/Sucking??
- Problem with hiccups
- Shes getting better!!!
- Parents in illinis
- Parents in illinis
- Landen follow-up appointments
- pulmonary hypertention...scared
- Even Parents of Survivors Grieve
- Graham's story....
- Feeding Issues & Reflux
- long term problems experienced with my cdh survivor
- My daughters website
- MRI Results following ECMO
- Adam's First Haircut
- hi
- we had a good day
- Claire
- Epidural = feeding!
- Here we go again
- Is there anyone here that has Pulmonary hypertension
- HUH
- Shelby's appointments
- Endoscopy Results Surprise
- Wow
- How is Michael?
- Feeding
- Medicines for reflux?
- GOOD NEWS
- FEEDING IMPROVEMENT DUE TO PROBIOTICS
- Braden's appointments
- Intensive Feeding Therapy
- Big Appointment Today
- help with reflux (again!)
- Any babies having / had a lung function test?
- New meds
- I LOVE my daycare
- Pics of Happy Cherubs
- gagging and reching
- Michael's latest echo
- Nissen...What are your thoughts?
- Trouble Transitioning to solids...
- Duocal
- Am i the only one?
- Let's see if this works
- When did your Cherub get to come home?
- Why is he doing this?
- enough is enough
- no dr's appts!!!
- Off To Baltimore
- Feeding Issues
- survivor-35 days on ECMO
- Physical Limitations of Your CDH child
- Toni is out off hospital 1yr on Sunday
- Adrian up Date
- The 1st birthday
- Gabriel Athan Update
- Cole Asthma
- Talking with other Cherubs
- over inflated lungs on x ray?
- Bottle feeding a breastfed baby
- A huge milestone!!!
- Hi Shanell
- 14 Month Old Check Up
- what / when did you tell your cherub about CDH?
- Maternity leave is over....
- Baer has a virus?
- Adrian is home
- Caden started preschool!
- Ciao a tutti
- 4th Surgery for Angelina
- Happy Birthday, Kristin
- Your Cherub and Preschool
- ARGH!
- Good visit
- How is Baby Louis?
- Adrian
- PLZ MEET MY MIRACLE, SAVANNA SAIGE
- How is Liam?
- Australian gathering??
- 9 months!
- Update on baby Angelina's 4th Surgery
- Ayda is 1 year old tomorrow
- Intestinal Issues and older CDH kids
- Update on Henry
- Hey
- Juan Pablo walking
- Please pray for Isabel Ruth
- Juan Pablo's 4th surgeon appt.
- pulmonary hypertension
- Braden's video
- Baer at the Pumpkin Patch
- RSV Season already?
- Nicole is walking!!!
- What is synagis (palivizumab)?
- Any Suggestions...Oral Aversion
- Follow up CDH clinic
- Adrian's baptism photos
- so Grateful!!
- How did you pay for medical care?
- Duke vs. Cincinnati
- Happy Birthday Par!
- learning to crawl
- Get Weston to take the bottle
- More on Weston
- Weston was in hopsital with pneumoina
- More on our precious daughter Isabel! Five months old!
- Nayeli
- Its almost here
- Problems with the battle
- Braden's 1st haircut
- special christmas
- Braden needs to gain weight!
- My special Christmas gift
- Baer got a Haircut, he looks like a little man!
- Question about CHERUBS talking and breathing
- Nayeli's First FU at UCSF
- Boston CDH clinic
- HAPPY BIRTYHDAY NICOLE TENNYSON!!
- Explaining CDH
- Ian Meats' CDH video - journey in pictures
- Can You Say "Diaphragmatic Hernia"?
- Tracleer?
- Very Good News
- I'VE MISSED SO MUCH!!
- Adam and Esophagus question
- Chewing foods
- Claire update
- Transition from J to G tube
- Chronic Bronchitus-anyone else had this problem?
- Did anyone deliver in Cincinnati or University of Michigan?
- John Michael's CDH Journey video
- Braden is headed to CHOP on 3/3
- have any of your cherubs had croup?
- Braden's birthday pic
- We're back...... LONG STORY
- Braden's 1 year check up
- Weston's in the hospital with RSV
- Update on Weston
- Any Cincinnati Families Out there?
- How do you "parent" a miracle baby??
- UGH Football
- Ending isolation
- not gaining enough weight
- New Here With Questions
- experience with not eating before surgery?
- Update on Braden
- Nobody could've prepared me for this...
- Reflux?
- Question About Regurgitation
- Birthday for Elijah
- When can I stop being scared?
- Ng tube to G-tube
- Any other Southwest Florida Parents?
- Worried about Weston
- Going home on oxygen
- FDA approves new drug for Pulmonary Hypertension
- Possible Reherniation or Stretching of the Patch?
- Dealing with GI doctor
- Worrying about Ericka being "confused."
- Adrian's Birthday Pics
- Ordering CDH Awareness Bracelets
- Elevated Diapghram
- meet other parents of surviving cherubs
- picture of my cherub
- Follow up appointment for PHP Clinic @ CHOP
- Growth Hormone Replacement Therapy
- Celebrating a Year of Miracles
- Braden's 15 month check
- Re-herniation - Worried
- Gaining weight issues and throwing up
- Excessive Coughing
- finally walking...:)
- Fresh start~!!!
- Weston's turning ONE
- feeding clinic appointment-HELP!
- Bad Circulation?
- getting nervous about traveling with Braden
- What NG Equipment Works For You?
- How to parent the non-cherub
- About our cherub.
- Got good news on Kiyari
- Help, trying to stick with NG tube
- Rollercoaster Ride
- So proud of my little princess
- Our Up-Coming Family CDH genetic study day
- Update on Jonah
- Results from Baer's GI study ~ Need lots of help!
- Weaning from continuous feeds?
- Prevacid for reflux
- Proof that things happen for a reason ...
- Did/Does your tube fed baby act hungry??
- early intervention evaluation tomorrow
- Reglan/Prevacid/Zantac
- Surgery Date Set
- Periactin
- worried
- Second winter
- Juan's 6 month check up.
- Our Own Little Cherub Survivor - Riley Koen
- Clodaghs gagging and severe tummy pains, please help
- My introduction!
- Braden's 18 month check up
- looking for advice
- Feeding
- I can't seem to get her to eat.
- swine flu vaccine for your cherub
- Elinor is coming home!!!
- Pulmonary function tests
- Happy 1st Birthday Nayeli Faith!