View Full Version : Support for Surviving Cherubs & Families
- Sierra 3 years later (1 replies)
- CDH Survivor and PTSD (5 replies)
- 2.5month baby still in hospital working on feeding (4 replies)
- Pray for us!! (6 replies)
- Hello From NYC (1 replies)
- Wandering Spleen & Gastric Volvulus (3 replies)
- Paraesophageal Hiatal Hernia (3 replies)
- Looking for older (teenage) survivor parents (3 replies)
- Elijah is 3 months old! (4 replies)
- Bilateral cdh survivors (0 replies)
- My unborn child has a CDH and a hernia (7 replies)
- Re-Herniation at 1yo (10 replies)
- My son's surgery today (11 replies)
- 16 month old cherub with pneumonia (2 replies)
- Feeling Torn And Frustrated (10 replies)
- Thoughts, encouragment, prayers and advice needed (20 replies)
- 16 month old Cherub sleeping issues...any advice (1 replies)
- Charlie Anne is home! (5 replies)
- LCDH came home with no help but now is needing help... anyone have this happen? (4 replies)
- Finally got to hold her! (10 replies)
- Rod fusion surgery for scoliosis (9 replies)
- 7 1/2 month old diagnosed with morgagni hernia....any one else go through this? (33 replies)
- Surgery tomorrow (10 replies)
- Caved in chest (4 replies)
- Did your CDH baby outgrow reflux? (8 replies)
- First Birthday Emotions (5 replies)
- Cold season SUCKS!!! (2 replies)
- recurring adhesive bowel obstrucions? (5 replies)
- leaving baby in nicu (3 replies)
- Constipation Problems :/ (5 replies)
- home from NICU. (5 replies)
- Update on Sophia (5 replies)
- How long was your hospital stay? (11 replies)
- Scar care (7 replies)
- Sierra (47 replies)
- 7 week old, RCDH, questions (4 replies)
- Any survivors born before 30 weeks? (0 replies)
- Breathing Monitor (4 replies)
- GI issues and Nervous system? (0 replies)
- Pain and popping sound? 6-yr old right-sided survivor. (19 replies)
- Wanting to meet other cherubs (6 replies)
- Scar Tissue Surgery (3 replies)
- Universal Medical ID (12 replies)
- Lung Development (8 replies)
- g-tube that is slides in and out from 3 mark to the 1 mark. (2 replies)
- LCDH Sac (4 replies)
- Sensory Processing Disorder (SPD) (9 replies)
- removed gtube site leaking (1 replies)
- Medic Alert (3 replies)
- Dizzy and Headachey Cherub (9 replies)
- Chlorine and cdh (12 replies)
- Celiac Disease (9 replies)
- Swollen cdh scar years on (3 replies)
- CT Scans (10 replies)
- Gassy baby who can't get burps out (14 replies)
- Adhd (54 replies)
- Trusting others with your cherub (7 replies)
- My baby is a mystery: My story! Any ideas? (35 replies)
- Delayed grow at 32 weeks. (7 replies)
- Diastasis recti (2 replies)
- Phoebe the fighter (4 replies)
- Questioin about ECMO (2 replies)
- cannula (7 replies)
- Partial Bowel Obstruction???? (152 replies)
- 8 month old CDH survivor with over inflated lung. Anyone have experience with this? (5 replies)
- Question about meals in the hospital for parents (5 replies)
- CDH and feedings (15 replies)
- And the results are in for Braden! (6 replies)
- Reherniation - Almost age 3 (Niklas) (4 replies)
- Starting Kindergarten (3 replies)
- Still pregnant, but I have a question (8 replies)
- CDH Kiddos and Their Siblings (15 replies)
- The CDH Child and Their Emotions (9 replies)
- Maxwell just won't eat (18 replies)
- Need to Vent (14 replies)
- Benecalorie (8 replies)
- Please Help... (9 replies)
- Anyone with a child diagnosed very late? (11 replies)
- Chest Pains (24 replies)
- Looking for teen CDH survivors (0 replies)
- Looking for teen CDH survivors (0 replies)
- Gagging - new symptom in 3 year old (6 replies)
- out of options for weight gain due to puking! need Help (5 replies)
- Flu questions (10 replies)
- Failure To Thrive (8 replies)
- Surgical Follow-up? (7 replies)
- Ng tube and vomiting (9 replies)
- NG Tubes Tips (2 replies)
- Three Years Ago Today (5 replies)
- Questions... (6 replies)
- Anya Mae is going home!! (6 replies)
- Questions... (2 replies)
- DTaP vaccine (1 replies)
- Being home and anxiety. (5 replies)
- Baby after CDHer? (7 replies)
- Help my cdher doesnt want to eat anymore (12 replies)
- High diaphragm (1 replies)
- Cleveland University Hospital (8 replies)
- Wondering about redoing Lucys Nissen?!?!? (1 replies)
- Pulmonary hypertension not improving (4 replies)
- Pulmonary hypertension not improving (1 replies)
- any one ever heard or dealt with a paralyzed diapgrahm (5 replies)
- compact Y feeding bag sets (1 replies)
- Getting My CDHer to eat... (4 replies)
- Puking...Just a Right of Passage? (15 replies)
- Anya is off of ECMO (7 replies)
- Please help!!!! Im so confused (8 replies)
- Dialysis while on ECMO (2 replies)
- Is this still an oral aversion? (15 replies)
- Is anyone going to the cdh conference in california???? (3 replies)
- Update on Ian's Yearly Check-ups (3 replies)
- Dakota's checkup and possibility of slight scoliosis (12 replies)
- Medic Alert Tags (13 replies)
- Any advice? (12 replies)
- New to the cherubs website (16 replies)
- How is your child Today? (34 replies)
- TX Survivor families (4 replies)
- Advice from other CDH Mommies - MRI or Not (3 replies)
- Where to stay at Shands (2 replies)
- Medical Supplies/Simply Thick (2 replies)
- Needing some help here for our Lucy girl! (12 replies)
- Survivors and Daycare (28 replies)
- Dilema (5 replies)
- Feeling bummed tonight. (6 replies)
- Question for Parents of Multiple CDH Babies (0 replies)
- Gassiness? (3 replies)
- Need some advice (6 replies)
- 2 CDH baby in row (26 replies)
- Sick. (8 replies)
- Prayer Request (8 replies)
- Really?! (12 replies)
- Reflux? Seizures? What is this? (3 replies)
- Looking for a CDH doll (1 replies)
- Advice needed about nissen fundoplication (6 replies)
- Parents of Cherubs with Hearing Loss (19 replies)
- Going a little crazy here! (2 replies)
- update on my sunshine warrior Lewis, long overdue i know! (2 replies)
- Blanket & Pillow (8 replies)
- Signs of re-herniation? Please help! (7 replies)
- Gabriella Turns 2 (6 replies)
- Braden hit the 30 pound mark! (3 replies)
- Surgeon Appointment Today (8 replies)
- Zoe still refuses to 'suck' or drink voluntarily (6 replies)
- Transitioning from Baby Food to Table Food (12 replies)
- Vida Rae is a survivor (5 replies)
- Speech Delay (5 replies)
- Failure to thrive. (8 replies)
- Free Peptamen Jr to good home!! Just pay shipping. (0 replies)
- Two Years Ago Today (4 replies)
- My son Dominik, Im so excited! (6 replies)
- testing (1 replies)
- First CDH Clinic/Liam Michael Bryant Update (1 replies)
- Need Answers (6 replies)
- Need Answers (0 replies)
- Video Share (1 replies)
- Scoliosis (5 replies)
- Got Holly's MRI results ..... (3 replies)
- Another surgery for Ericka. (9 replies)
- Liams comming home (4 replies)
- Emergency Plea for future CDH families! (0 replies)
- Emergency Plea for future CDH families! (0 replies)
- Emergency Plea for future CDH families! (0 replies)
- Emergency Plea for future CDH families! (1 replies)
- New Washington State CHERUBS Representative (0 replies)
- Progress: Liam got a nasal canula (3 replies)
- NICU Feeding Challenges - any stories?? (10 replies)
- High cholesterol (4 replies)
- Getting Closer! (6 replies)
- Updates....? (6 replies)
- new to this with a undiagnosed cdh (8 replies)
- ADRIAN 3 yrs old (8 replies)
- Introduction (18 replies)
- Any 30 week survivors (40 replies)
- Update on Alyna (28 replies)
- No support and needing to vent (9 replies)
- Any similar cases? (6 replies)
- confused about breast feeding and "feeding issues" (11 replies)
- NICU Reading Recommendations (3 replies)
- Weight Gain Advice (7 replies)
- Very stressed-Just got Failure to Thrive diagnosis-Peptamen? (14 replies)
- shopping for baby (11 replies)
- UCSF? (4 replies)
- My Cherub-princess, allso diagnosed with Fryns Syndrome (5 replies)
- I'm kind of surprised.. (25 replies)
- PEDIASURE-NO MORE! (10 replies)
- Feeding Issues & Weight Gain (5 replies)
- Speech (7 replies)
- CDH not uncommon, only unknown! (12 replies)
- Happy 2nd Birthday to My Angel! (10 replies)
- Braden's 3 yr check up-prayers needed! (15 replies)
- Asking for Prayer (16 replies)
- ADHD or ADD (0 replies)
- Swollen Chest (3 replies)
- Your Thoughts... NG wean versus G Tube (24 replies)
- Eventration of the diaphragm (4 replies)
- Alloderm patch (2 replies)
- operation today (21 replies)
- Dalton asking the tough questions again (15 replies)
- saying Bye Bye to the bottle? (8 replies)
- Learning to eat (9 replies)
- RSV again....and more news.... (14 replies)
- Reherniation - Finley Anabelle (21 replies)
- Aaron Nathaniel Powell (3 replies)
- Update on Hollis (5 replies)
- No matter how much they say they understand... (4 replies)
- High Altitude (3 replies)
- Eating to Healthy? (5 replies)
- Question about your anatomy scan (11 replies)
- Happy 2nd Birthday to my Christmas Miracle (11 replies)
- NG Tube/Heart Monitor supplies looking for a good home! (0 replies)
- Help! what a day with feeds (8 replies)
- update on Noah (78 replies)
- When is your survivor healthy 'enough'? (12 replies)
- Another big step ... sleep study tonight! (12 replies)
- Oxygen and PH meds (1 replies)
- Starting solids after CDH (12 replies)
- Trial day with no oxygen! (10 replies)
- Nutritionist (3 replies)
- Our baby on ECMO (13 replies)
- feeding issues/weight and food allergies (23 replies)
- Savannah born 8/30/2010 (5 replies)
- frustrated with feeding!!! (7 replies)
- doesnt want to eat.. (15 replies)
- prayer request (6 replies)
- RSV Shot (21 replies)
- Pulmonary Rehabilitation (8 replies)
- My little princess Megan...problems we now face!! (8 replies)
- Feeling kind of down today (8 replies)
- Feeding Issues & 2nd Surgery - Niklas (13 replies)
- Axel Ray Cruz (15 replies)
- eye patch (2 replies)
- Wean off reflux meds? (4 replies)
- Advice on feeding? (7 replies)
- How long without food - getting rid of NG (9 replies)
- Overdue Elijah Update (7 replies)
- Update on Mattiaus, born Aug 24/10 (46 replies)
- weight and growth check on 9/30 (17 replies)
- Pectus excavatum problems (22 replies)
- Bowel movements (6 replies)
- albuterol (6 replies)
- Pulmonary Hypertension (9 replies)
- Booster seats (7 replies)
- Familiar Symptoms? (14 replies)
- Hopes and Dreams (4 replies)
- A "wanna-be"?? Really?? (75 replies)
- Feeding questions (12 replies)
- Caretaker - Getting a Cold (6 replies)
- Early Intervention after 3 years old... (6 replies)
- Dakota's first sign of sickness (25 replies)
- The Mighty Quinn (27 replies)