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PennyCampsey
04-27-2008, 07:04 PM
Do we have a list of hospital's that provide ECMO ?
I know of a few, but was just wondering, thought that information may be useful to us. If we dont have one, do you think we could somehow compose one?

Dawn Torrence Ireland
04-27-2008, 07:50 PM
No, we don't have one, but I'm sure there's a list somewhere. I'll see what we can find - surely one of our Medical Advisors has a list.

PennyCampsey
04-27-2008, 08:10 PM
Thank you :) It's just on my mind for reason. .. . . ..

AmyMiles
04-27-2008, 08:42 PM
I know that University of Michigan and Spectrum/DeVos Children's hospitals have ECMO.

karahess
04-27-2008, 08:43 PM
Akron Children's Hospital also has ECMO.

PennyCampsey
04-27-2008, 08:44 PM
Oh, great ..
I know the University of Viriginia does, and as far as I can tell, that's the only one in VA .....

PennyCampsey
04-27-2008, 08:47 PM
There was another CDH baby at UVA while cole was is NICU, it was on ECMO ... i often think about that family , wonder about that baby.
Didnt get to talk to the family, the mother wasnt able to be there much for some reason, so our paths never really crossed

Donna Easley
04-28-2008, 05:51 AM
I know Vanderbilt Childrens Hospital has ECMO

Cristin Russell
04-28-2008, 10:11 AM
Children's Hospital Boston
Massachusetts General Hospital Floating Hospital for Children
Children's Hospital of Pennsylvania

BeverlyCawvey
04-28-2008, 07:00 PM
Sad to say some Hospital's have EMCO But, Not the ECMO Specialists.
hope this helps =)

Chicago Children's memorial Hospital

http://www.childrensmemorial.org/
Extracorporeal membrane oxygenation (ECMO)
Extracorporeal Life Support (also known as extracorporeal membrane oxygenation, ECMO) is cardiopulmonary bypass pumping done for prolonged periods of time at a child's bedside. Cardiopulmonary bypass was originally developed to allow surgery on the pediatric heart during "open heart surgery." However, we have been able to adapt the technology to support children who suffer pulmonary failure from a large variety of causes.

Children with overwhelming pneumonias, those born with severe congenital anomalies such as diaphragmatic hernia with pulmonary hypoplasia, or children who have heart failure following cardiac surgery may be candidates for ECMO support. In all of these children, ECMO circulates a child's blood so that oxygen can be supplied to the body and gaseous wastes removed, allowing time for healing for a child's damaged lungs.

These highly complex procedures are done in the Neonatal Intensive Care Unit or the Pediatric Intensive Care Unit at Children's Memorial. Staff members in the Division of Pediatric General Surgery, as well as a host of other supporting services, provide consultation. Full parental consent is sought prior to the initiation of the ECMO procedure, which generally lasts from several days to as long as three to four weeks.

Pediatric surgeons are available to families to keep them fully informed of a child's progress when undergoing this innovative but technologically demanding support. Ancillary care services and surgery are provided as necessary, and pediatric surgery maintains long-term follow-up services for all of the children who have undergone ECMO.


++++++++++++++++++++++++++++
University of Chicago Medical Center.
Donald Liu, MD, PhD
Associate Professor of Surgery and Pediatrics, Surgeon-in-Chief for the University of Chicago Comer Children's Hospital
www.uchospitals.edu/physicians/donald-liu.html

LynneB
04-28-2008, 07:18 PM
I know that they have ECMO in Columbia SC and MUSC in Charleston. They have one at Emory in Atlanta also. Those were the choices we had with Baer.

MelissaKelly
04-28-2008, 08:38 PM
Driscoll Children's Hospital in Corpus Christi, TX has ECMO, and amazing staff. Their PICU is fantastic, they're practically family.

PennyCampsey
04-28-2008, 08:41 PM
It's truly some amazing people that work at these places

Keith and LynetteMoloney
04-28-2008, 11:25 PM
Childrens hospital of Philadelphia, has ECMO, and a CDH program. Very informative.
Schneiders Childrens Hospital, New Hyde Park, NY
Columbia Pres. NY

StephanieOlivarez
04-29-2008, 03:46 PM
Peyton Manning's Children's Hospital at St. Vincent has ECMO. With a FANTASTIC staff. They were amazing when Shelby was on ECMO.

Riley Children's Hospital in Indianapolis also has ECMO. Have heard that the doctors there are great.

Bethany Gillham
04-29-2008, 04:08 PM
Arkansas Children's Hospital in Little Rock, AR has ECMO. That's where Jack was.

karahess
04-29-2008, 04:25 PM
Cincinnati Children's Hospital has ECMO and a dedicated CDH clinic. Rainbow Babies in Cleveland also has ECMO.

TaraHall
04-30-2008, 08:28 PM
Nationwide Children's Hospital in Columbus, OH has one with a wonderful staff (well almost twelve years ago anyway) . The three major children's hospitals in Ohio have one, Kara listed Cleveland and Cincinnati. Some hospitals may list ECMO but if you do a search you need to use Pediatric ECMO for your criteria as they may have it but just for adults.

PennyCampsey
05-01-2008, 08:34 AM
That's neat you mention Columbus ... Cole's surgeon that did his repair moved from UVA to Childrens Hospital in Columbus. I think that's what it's called. I still keep in touch with him & send him pics, super nice man. Dr. Marc Michalsky.

TaraHall
05-02-2008, 08:08 AM
Oh when did he move here? They have recently changed the name (in the last year) to Nationwide Children's Hospital. It is about 15 mins from us and that is where Brandon has had all his surgeries and did his NICU stint. His surgeon is Dr. Jon Groner. I am going to send him info on the conference to see if he is interested in attending. He has come to our Ohio picnics a couple of times.

Tara

PennyCampsey
05-02-2008, 07:43 PM
He moved right after Cole's surgery in March 2003, I think he may have moved around 2004.
HE IS GREAT!!!
If you meet him, tell him a family from UVA mentioned him, he is so nice!!!

LynneB
05-02-2008, 07:45 PM
Tara on another note, I see you are from Ohio, GO BUCKEYES!

Chris and TracyMeats
05-09-2008, 01:18 PM
Primary Children's Medical Center in Salt Lake City, Utah, has ECMO and a fantastic ECMO staff. To this day, we still keep in contact with Ian's primary nurse from the NICU. The doctors and nurses are amazing at PCMC and continue to be. Ian actually likes going to his checkups!

CathyHopkins
05-20-2008, 01:58 PM
Children's Hospital of Birmingham, Alabama has ECMO