New CDH Awareness Video - we need your help!

[Dawn Torrence Ireland]

I'd like to put together a video of CDH families to stand up to this Congenital Diaphragmatic Hernia Awareness trademark. I would like *ALL* CDH families to participate! Not only will be this good for standing up to this trademark but for awareness in general.

To participate, send in a video clip just a few seconds long to membership@cherubs-cdh.org Make sure to include your name and your cherub's name!

The video should include you, your cherub or your family just standing / sitting and saying "I own Congenital Diaphragmatic Hernia Awareness". Or "We own Congenital Diaphragmatic Hernia Awareness" if there more than one person in the video.

Young CDH Survivors - Videos of CDH survivors saying this would be great... especially the little ones looking all cute! :)

New Parents - videos of parents saying this in the NICU beside their cherubs would be great. The whole NICU experience and dealing with CDH is what is we're trying to raise awareness about!

Expectant Parents - show off that tummy and say it! :)

Grieving Families - hold a photo of your cherub and say it or stand at the cemetery or whatever you want to do to get the point across that this is a deadly birth defect and awareness is crucial.

You don't have to be professional to take the video. You don't have to be glammed up or in a studio. Just be yourselves!!! Use any video camera at all, it doesn't have to be perfect quality.

The video will include your photos and a few slides about what CDH is. It will also include 1 or 2 slides stating that we are fighting to stop the trademark. CDH families and organizations (those not involved in helping BoH) are invited to participate.

This video will be posted on YouTube, our sites, blogs, Facebook, Myspace, etc. You'll be able to post it yourselves to wherever you'd like as well. This video will also be sent to the Board of Directors at Breath of Hope, Incorporated as a plea to get them to knock off this trademark nonsense.

We'd like to get at least 50 families participating! Deadline to get your video in is February 25th!

Feel free to post this to your blogs, myspaces, facebooks, etc or send it to other CDH families!

[Chris and TracyMeats]

Sounds great Dawn!! I will have to get my video camera out this weekend and see what I can get on camera.

[Dawn Torrence Ireland]

Thanks, Tracy!

And any doctors, nurses, medical staff are welcome to participate too!!!

[KarlaHolt]

We're on it! Just got a new camera!

[Dawn Torrence Ireland]

If you parents of survivors want to go for the extra cute factor, you can have your cherubs lift up their shirts like our Aussie members do for their conference photos.

(sorry, Danielle, totally using this idea, it's too darn cute!!!! lol)

[KimberlySwitzer]

I will hopefully get a good one tonight, Haylee isn't the most cooperative lately!

[ReneCouret]

Dawn, my mother and I recorded our video today while visiting Gregory's memorial. I'll be sending it to you tomorrow. Happy Valentine's Day everyone.

[KateC]

Dawn, this is the best idea I have heard yet! I love this! It is great!!!! The weather is suppose to be getting bad, but I will get to the cemetary with the girls soon, and take a video.


Do you need help putting it together?

[KarlaHolt]

Here is our video! I promise Braden was not hurt in the process! His sister just likes to beat him up!

http://www.youtube.com/watch?v=buDM1Abmzr4

[StephanieOlivarez]

Maybe I can get Barb, Corin and Kate to do a video with all of us together.

[CarrieCrum]

I made one already but having problems uploading it to you Dawn. It's on myspace right now but will try again tomorrow.

[Dawn Torrence Ireland]

Hi Everyone, loving these videos coming in! Please e-mail them to me at membership@cherubs-cdh.org - I need the actual video file to work on this (I can't download them from youtube or myspace). Thank you!!!

Steph, I expect to see at least 5 videos from you all this week!!! And I want one of Miss Shelby saying "I own Congenital Diaphragmatic Hernia Awareness!". :) And all the girls with her of course!

[LynneB]

I am trying to get my camera and computer to cooperate!

[Dawn Torrence Ireland]

You can do it, Lynne! :)

I'm going to upload the videos I receive into a folder on our YouTube acct so that we know which ones we have received.... will try to get that done by tomorrow. But please don't just send me to your YouTube acct, I do need the actual file on my computer to do this.

I am so excited about this video, we're going to raise so much awareness while standing up to this trademark!

[KateC]

Stephanie, that is a GREAAATTT idea!!!!! We can get one of the guys to record it for us.

[KarlaHolt]

I will try again. I hope you can use it as Brooke worked really hard on her lines.

[KarlaHolt]

I sent mine again. Is there anyway you can tell me if it works?

[Dawn Torrence Ireland]

Love the group video idea but I need separate videos please! :) We want the video as long as possible with as many separate videos as possible - more of an impact that group.

[Dawn Torrence Ireland]

Some of the videos are posted on our youtube account! I haven't made "the" video yet, these are the clips that have been submitted.

http://www.youtube.com/view_play_list?p=2710697623A7F2EC

Just a few of the "I Own Congenital Diaphragmatic Hernia Awareness" - videos by families, friends and medical care providers fighting the trademark on "Congenital Diaphragmatic Hernia Awareness" by Breath of Hope, Inc. http://www.ipetitions.com/petition/cdhawareness

To participate e-mail your video file to membership@cherubs-cdh.org with your cherub's name and info and the name(s) of those in the video. The script is "I (or we) Own Congenital Diaphragmatic Hernia Awareness"

[KarlaHolt]

Can someone please tell me how to submit the video? I'm guessing mine didn't work because it's not there. How do I send it from ivideo on the mac? Thanks!

[Dawn Torrence Ireland]

Ohhhh, you're on a Mac. Hmmmm... ok, surely someone here knows how to do that! Don't worry, Karla, we will get the video included, I promise!

I never received yours though.... did it bounce back to you?

[Dawn Torrence Ireland]

It went into my junk mail folder, I got it! Ok, trying to add it now.

[Dawn Torrence Ireland]

Ok, we have a problem, Karla.... I got 5 files, which I guess are all the parts of the videos? But it's all in a format I can't read. Can you use your software to convert the whole thing into a video? Into 1 file that's in .mov or .avi or .wmv format?

[Dawn Torrence Ireland]

Got it to work, Karla!!!! And it's ADORABLE!!! :)

[KarlaHolt]

Oh, thanks so much Dawn!!! I kept sending it a few times because I thought it wasn't working. Finally, I asked my brother how do it since he works for Apple. He's my source for all things mac related. Anyway, what he told me to do the last time I sent it must have worked!!

[StephanieOlivarez]

Watched all the video's and they are great.
We did a video and it should be coming soon..............

[DanielleGolding]

HELP!!!!

We did a video too and it doesn't seem to upload so I can send it via email. Can anyone help me with this????

Please help;)

[DanielleGolding]

Ok - ignore that!!!

I uploaded it to photobucket and then emailed the link. Hope it works!!!

[KateC]

We did a group but I still have plans of doing one at the cemetary also

[DanielleGolding]

Ok so Dawn needs the video file and I'm guessing maybe my internet speed is too slow, I even tried going to yousendit.com

Has anyone got any other suggestions????

[Dawn Torrence Ireland]

Danielle, I saw the slide show you sent... I think it's so big because it's a slide show with the video and photos. Try just sending the actual video without the photos. Does that make sense?

[DanielleGolding]

I've tried everything Dawn....sorry! I'm really annoyed I can't get it to attach to an email.

[LynneB]

Dawn, I cannot get my video camera to work. Can i send a pic instead?

[DanielleGolding]

LOL Dawn, I see I accidentally sent you all my pics in photobucket...whoops!!!

I've tried everything!!! How disappointing, not to worry!

[DanielleGolding]

Dawn - I honestly think I'm going insane.

Ok I'm pretty sure I emailed it correctly from photobucket. Just let me know either way. If it can't be included I totally understand. Sorry to be
annoying, I know you have much bigger worries than my inability to use technology;)

[Dawn Torrence Ireland]

Danielle, I think we got it! :)

Lynne, I'll videotape you next week! :)

[Damon andSharonknott]

Dani, jut saw ur's on f/b very, very cute!

Hoping to get mine done today!

[Dawn Torrence Ireland]

I have to say... you all are sending in some of the cutest videos!!! The kids are all adorable trying to say "Congenital Diaphragmatic Hernia Awareness". It's just too darn cute!!! :)

[Dawn Torrence Ireland]

http://www.youtube.com/view_play_list?p=2710697623A7F2EC

[DanielleKessner]

They are so cute. The Holt kids mke me giggle each time and it was so good to see Ethan Golding in fine form :-)

I may do one - ours will be missing the cute factor though, lol.

[DanielleGolding]

Lol Danielle - I am at serious loggerheads with him at the moment!!!
Hope you are well xxxx

[DanielleKessner]

It must be the name. I am at my wits end with my Ethan. 12 and in his first year of of secondary school and he think he rules the world (so our house in his eyes is small potatoes!). Grrrrr!!!

[StephanieOlivarez]

Dani--your video is DARLING!! I love Ethan!!!!

All the video's are WONDERFUL!!!

[DanielleGolding]

Oh Steph and Kate,
Your girls are so beautiful. How special to be able to do that together.
Lots of Love xxxx

[StephanieOlivarez]

I still cry when I watch the video.
I know Shannon was right there with all the girls.
Love to you Dani.

[Dawn Torrence Ireland]

Videos are due this week! :)

Would anyone be opposed to using your photos from the albums also in the Congenital Diaphragmatic Hernia Awareness Belongs To Everyone video?

[Chris and TracyMeats]

I think that would be a great idea Dawn regarding the pics! I haven't got my video done yet. I have had such sick kids and so grumpy, we haven't got to take a video yet.

[DanielleKessner]

No probs here :-)

[KimberlySwitzer]

Feel free to use my pics :) I can't wait to see the finished video!!

[DanielleGolding]

Go for it!

[LynneB]

Sounds good to me!

[KateC]

Just finished Steve and I's video today will upload and send soon.

[KimberlySwitzer]

There is a member having problems emailing hers to you Dawn, it says the file is too big. Is there anyother way she can get it to you? youtube, facebook etc?

[DanielleGolding]

I had trouble too Kim, is she able to upload it to photobucket and email it from there. That's what I have to do.

[SCURTIS]

Thanks Danielle... I'll try that!

[DanielleGolding]

Hope it works Shauna! Let me know if I can help...

[Dawn Torrence Ireland]

Deadline extended until the 15th. Bear with me, it's crazy hectic around here this week. If I received your video, I'll let you know by Monday. Thanks!!! :)

[KateC]

Having issues emailing mine for some reason. Will try again today.

[StephanieOlivarez]

These video's are WONDERFUL!!!
Please, if you can send in a video....do.
It is so important we show that ALL of us own CDH Awareness.