2010 CDH Conference Schedule - May 13 -16, 2010

[Dawn Torrence Ireland]

CHERUBS 2010 International Member Conference

May 13 - 16, 2010
Orland, Florida


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Summer Bay Resort Holiday Inn Express
Orlando, Florida



About Our CDH Conference:

Expect to learn a lot about Congenital Diaphragmatic Hernia! Meet new friends, see old friends and participate in research for various hospitals.

For safety and privacy of our members, you MUST be a member of CHERUBS to attend. You may register for free at http://www.cdhsupport.org/members

Children are welcome and babysitting services will be provided during conference hours. Volunteer babysitters are needed and all parents who request babysitting are obligated to donate a minimum of 1 hour of volunteer time per child to help out.

The hotel offers free breakfast and shuttle to and from the amusement parks.

Families are responsible for all other meals and all transportation, accomodations and entertainment.

CHERUBS does not charge a conference fee.

Many families of survivors are eligible for grants to cover travel expenses to medical conferences. Ask your child's social worker for more information.


Registration:

Make sure to register with us so that we can expect you! Registration deadline is May 1, 2010.

CHERUBS has a block of 20 rooms reserved at a discount rate at the Summer Bay Resort Holiday Inn Express. They are available on a first come, first serve basis. To book at $65.00 per night, you must reserve a room by April 13th.

If you are coming alone and would like to share a room with another member, visit our forums to find a roommate.



Conference Schedule:


Thursday, May 13, 2010

7:00 - 9:00 pm - Pizza Party and Introductions



Friday, May 14, 2010 - CDH Support

8:00 am - 8:45 am Round Table Discussions Session 1

* For CDH Survivors (choose one)
o Physical and Occupational Therapies
o Feeding Issues
* For Grieving CDH Families (choose one)
o Faith & Doubts In Grief
o Dealing With Anger

9:00 am - 9:45 am Round Table Discussions Session 2

* For CDH Survivors (choose one)
o IEPs for School Age Children
o Early Intervention for Infants & Toddlers
* For Grieving CDH Families (choose one)
o Grief and Siblings
o Dealing With Special Days

10:00 am - 10:45 am Round Table Discussions Session 3

* For CDH Survivors (choose one)
o Dealing with Family & Friends
o Marriage & Having a Special Needs Child
* For Grieving CDH Families (choose one)
o Dealing with Family & Friends
o Marriage & Grief

11:00 am - 11:45 am Round Table Discussions Session 4

* For CDH Survivors (choose one)
o Pregnancy After CDH
o Helping Other CDH Families
* For Grieving CDH Families (choose one)
o Pregnancy After CDH
o Creating Something Good From Sadness



Saturday, May 15, 2010 - CDH Research

8:00 am - 11:00 am - Guest Speakers On Current CDH Research Studies

8:00 am - 9:00 am - Meaghan Russell and Mauro Longani from Mass General

9:00 am - 10:00 am - Speaker Information coming soon!

10:00 am - 11:00 am - Speaker Information coming soon!

11:00 am - 12:00 pm View Research Booths, Sign up for CDH Research Studies



Sunday, May 16, 2010 - CDH Awareness

8:00 am - 8:30 am - "Current and future global efforts to raise CDH Awareness" by Dawn Williamson, President & Founder

8:30 am - 9:30 am - Group discussion on how we can raise more CDH Awareness as a community

9:30 am - 10:30 am - Group discussion on how families can raise CDH Awareness in honor and in memory of individual cherubs.

10:30 am - 11:00 am - Saying Good-byes

[Dawn Torrence Ireland]

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$65.00 per night special conference rate
To book at this rate, you must reserve your room by April 13, 2010!


Our conferences are designed for families of CDH survivors, grieving CDH families, adult survivors and CDH researchers!

Since our first conference in 2000, CHERUBS is proud to work with the world's best CDH hospitals and researchers to bring the families and the medical world together. Our 2009 conference bought together 8 CDH groups and families from 4 countries!

Members who have attended our conferences will tell you that they learned so much more about CDH, made new friends and gained a lot of support.

Because our conferences are confidential to maintain privacy and allow parents to talk freely about their journeys with CDH, we only allow members of CHERUBS to attend. This is also to keep our members safe and medical information private. All CDH parents are invited to join CHERUBS for free by registering at our site at http://www.cdhsupport.org

Register here - http://www.cherubsconference.org/register.php

Room Booking info here - http://www.cherubsconference.org/hotel.php

[Dawn Torrence Ireland]

CHERUBS 2010 International Member Conference

May 13 - 16, 2010
Orland, Florida

http://www.cherubsconference.org/892077_104_b.jpg

Summer Bay Resort Holiday Inn Express
Orlando, Florida


Enjoy your stay at this beautiful hotel located in the grounds of Summer Bay Resort, just 6 miles from Disney World.

This great hotel was built as a part of the summer Bay Resort complex and nestled among sandy beaches and tranquil waterways, our hotel pampers our guests with a deluxe continental breakfast, complimentary transportation to the theme parks, and organized daily activities.
CHERUBS has a block of 20 rooms available for May 13 - 16 for $65.00 per night (+ tax and $7 day resort fee). These rooms include 2 queen size beds.

In order to receive one of the rooms blocked for CHERUBS conference, you cannot book through the front desk or on-line. You must contact the hotel conference director, Mary Matthews at 888-742-1100 ext. 7417 or email mmatthews@summerbayresort.com.

Summer Bay Resort Holiday Inn Express
Physical – 105 Summer Bay Blvd.
Mailing - 25 Town Center Blvd, Suite C
Clermont, FL 34714
Mary Matthews
Group Sales Manager
1-888-742-1100 x7417
Fx: 352-241-2268
mmatthews@summerbayresort.com
www.summerbayresort.com

The hotel staff is at your service to provide assistance with general information, attraction tickets, dining and entertainment recommendations, babysitting information or any other request you might have.

* <>Activities - The Summer Bay Resort activities director plans daily activities for both children and adults. An activities calendar with all this information will be provided upon your arrival.
* <>Entertainment – Scheduled entertainment includes Karaoke, Trivia, Pool Side Movie, Steel Drum Players, and Local Musicians.
* <>Water sports - Rent Jet Ski’s, Paddle Boats, Mini Pontoon Boats, and much more at our 64 acre lake. Bicycle Rentals are also available.
* <>Attraction Tickets - For your convenience, we sell tickets to major attractions including Walt Disney World ®, Universal Studios of Florida®, Islands of Adventure®, Sea World®, Busch Gardens® and many more. Visit http://www.localexpert.com/orlando/SummerBayResort/ for pricing and details.
* <>Business Center - For all your business needs, copies, faxes, computers etc., visit our business center located in the Main Clubhouse of the Resort.
* <>Internet – Computers are available in our business center and there is also wireless available throughout the Resort property. Current pricing will be available at arrival.
* <>Meeting / Banquet Space - Our Holiday Inn Express which is located at the front of the Resort property offers between 400 and 1,890 square feet of space.
* <>Cribs, High Chairs & Roll-aways – Can be rented through K&M Rental. 407-363-7388 / http://www.km-rentals.com
* <>Fitness Room - Our fitness rooms are open from 7:00 am to 11:00 pm for anyone 18 years of age and up. Shirt and shoes are required. Complimentary lockers and showers available at the clubhouse location.
* <>Guest Registration & Check-Out - Please be aware that our guest registration time is 4:00 pm and check-out is at 10:00 am.
* <>Tennis/Basketball/Shuffle Board/Horseshoe/Volleyball Courts - Our courts are open from 7:00 am until dusk, equipment can be signed out at the Activities Center.
* <>Grocery – Publix Supermarket is within walking distance to the resort. Our Resort transportation will also take our guest there and bring them back
* Gifts/Personal Items - Our store, conveniently located in the clubhouse, offers a variety of last minute items, dairy products, frozen foods, freshly baked cookies, beer, wine, film, pharmacy products, postcards, stamps and a line of sport-wear with the Summer Bay Resort logo.
* Nearby (less than 1/2 mile or 1K) – Publix Shopping Plaza, Denny’s, restaurants, gas station, hair salon, nail salon, and more! (Within 1 mile) Wal-Mart, Chili’s, Gators Dockside, McDonalds, Burger King, KFC, and more.
* Main attractions: Walt Disney World Main Gate (6 miles), Universal Studios (19 miles), Sea World (13 miles), Wet & Wild (15 miles), Bush Gardens (50 miles), Premier Outlet Mall (8 miles).

Resort Directions:

* From Orlando International Airport - Take 528 West to I-4 West, Continue on I-4 West to exit 64. Take US Highway 192 West. Continue for approximately 6 ½ miles; the Resort is on your right hand side.
* From Interstate 95 - Take Interstate 4 West to Exit 64. Take US Highway 192 West. Continue 6 ½ miles; our entrance is on your right.
* From Interstate 75 - Take the Florida Turnpike South to Exit 289 for US 27 South. Continue on US Highway 27 South to US Highway 192 East (approx. 22 miles). Our entrance is 1/2 mile ahead on your left.
* From the Florida Turnpike Traveling North - on the Turnpike, exit off at the Osceola Parkway (toll road). Continue on the Osceola Parkway for approximately 8 to 10 miles. Get off on exit for I-4 West. Travel I-4 West approximately ½ mile to exit 64 (Hwy 192 West). Exit on 64; travel Hwy 192 west approximately 6 ½ miles and the Resort will be on the right.

Amenities:
All guests can use the amenities of Summer Bay Resort:

* 64 acre Private Lake with a white sandy beach
* 5 Swimming Pools
* 4 Jacuzzis
* Kokomo’s Tiki Bar
* Big Kahuna’s Tiki Bar and Grill
* Fishing
* Boat Rentals
* Jet ski Rentals
* Beach Volleyball Court
* Aqua Park
* Interactive Water Playground
* Basketball Courts
* Tennis Courts
* Bicycle Rentals
* Shuffle Board
* Horseshoes
* Miniature Golf
* Scheduled Poolside Entertainment including Karaoke, Trivia, Movies, Steel Drum Players, and Local Musicians
* Game Rooms
* Fitness Centers
* Barbeque Grills
* Scheduled Activities programs 7 days a week
* Meeting/Banquet Space (located at the Holiday Inn)
* Free Transportation Around the Resor
* Free Scheduled Transportation to Walt Disney World
* Gated Entrance (for Resort and Holiday Inn)
* 24 hour security (all properties)


Hotel Features and Amenities:

* 24 Hour Front Desk
* Free Limited Breakfast
* Free Local Calls
* Free Parking
* Handicapped Accessible Rooms
* Non-smoking Rooms
* Outdoor Pool
* Laundry/Valet Service
* Safe Deposit Box
* Tour Desk/Concierge
* Truck Parking
* Air Conditioned Rooms
* AM/FM Clock/Radio in Rooms
* Coffee Maker in Rooms
* Data Ports in Rooms
* Hair Dryer In Rooms
* Iron/Ironing Board In Rooms
* Voice Mail in Rooms
* Cable Television
* In Room Movies
* Fitness Center on site
* Other Features: Non-Smoking Facility, Limited Shuttle Service, Game Room



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[karahess]

I just returned from Orlando and while there I took a look around the conference property. There will be plenty to do in the afternoons :) The resort grounds have nice sidewalks to stroll on without worrying about traffic. The property seemed quiet and peaceful. For the children, there is a fun looking interactive water play area and 2 nice playgrounds. There are multiple pools areas to choose from.

Rest assured, if you don't feel like hitting up the amusement parks, your afternoons can be spent nicely on the hotel property :)

[mskelly]

Sounds great! Thanks for the info! :)

[Dawn Torrence Ireland]

http://www.cherubsconference.org

Deadline to register for the hotel discount is TOMORROW, April 13th! You can still register later at full price. Make sure sure to follow the directions on the conference site and talk to Mary to get the discount!

This is going to be an AMAZING conference for CDH families with so much info and support and it's close to Disney and Universal! What better vacation is there than that? :)

[JenniferTenney]

I would like to attend the conference (Friday through Sunday-can't make it Thursday) but I don't need a room (my sister lives in Winterpark, FL, which is only about 1/2 hour from the hotel). How do I register for the conference, but not the room?
Thanks for all your hard work!!! Looking forward to it!

[mskelly]

Hi Jennifer, try the following link:

http://www.cherubsconference.org/register.php

Scroll down to the bottom of the page to register :)

[KarlaHolt]

You can register without making reservations. I'm not staying at the hotel either.

[JenniferTenney]

Can't wait to see you all this weekend! I will be there Friday morning!!!