admin
01-23-2007, 04:17 AM
Ours is a 25-year-old story with a very happy ending. We hope it may help someone else who has to endure this devastating situation.
Back in 1974 I became pregnant for the second time with my son, Rick. Our first, Jennifer who was only 7 months old at the time, was healthy and a joy so we were thrilled with the idea of another baby so soon. I thought my pregnancy was normal until my 8th month. Since my obstetrician must have also thought things were fine, no tests were ever ordered. I found out later that I had developed polyhydramnios during pregnancy, which would have accounted for my large weight gain and trouble breathing. But other than that, I always felt excellent during both pregnancies and didn't even experience morning sickness.
About five weeks from my due date I started having what I thought were Braxton-Hicks contractions in the middle of the night. Since they were coming irregularly I waited for a few hours. They suddenly stopped and I fell back to sleep. Upon waking in the morning I phoned the doctor to inform him. He suggested making my next appointment in ten days rather than two weeks. Oh boy, such concern! When I was examined he told me I was already half dilated and told me to go home to bed. Why I wasn't hospitalized, I'll never understand. But at the time, I was young and naive and thought all doctors were saints. Three days later my water broke and I immediately went to the hospital. After a few good contractions, Rick was born about four hours later following a natural, no med delivery as his sister was. He was instantly found to have a problem (he was bright blue). I was allowed a quick kiss and he was whisked away to the pediatrician. The pediatrician on call that night first thought it was a collapsed lung and ordered x-rays. Upon viewing them, he identified his problem as CDH. Thank God for Dr. Robert Childs of Hazleton, PA. He had just finished his residency at Hershey Medical Center where he had seen numerous cases. The decision was made to transfer Rick there. Unfortunately, it was a very foggy night and the State Police helicopter was grounded. So Dr. Childs accompanied the ambulance crew and Rick's Dad, all the while monitoring and squeezing the ambu bag to assist Rick's breathing. The doctor in charge of him at Hershey, Dr. Shochat, performed surgery on him at nine hours old. We were told he had a 10% chance for survival. Without getting into all the details here which would lengthen this considerably, I'll say that after a rocky start Rick slowly improved and was discharged home to us after seven weeks. He only had one other surgery at four weeks old. In the beginning his left lung was only a "bud" and since he had high concentrates of oxygen they couldn't tell us what the future held. But we didn't care. They told us to take him home, love him and allow him to grow and act as any other child. Loving him was easy and luckily, we were blessed with no other long-lasting effects from the CDH. After only a few checkups at Hershey it was found that his left lung had expanded and he has no vision impairment from the oxygen.
Throughout his childhood Rick behaved as normally as any child I've seen. He was a healthy, intelligent, handsome, loving boy who grew to a man with the same attributes. We've just enjoyed a year of having him home with us after serving six years in the Navy aboard an aircraft carrier. Having him home completes our family again with his 26-year-old sister and 15 year old stepsister. I am truly blessed to have such a great husband and family.
At the time of Rick's birth, birthing partners were not allowed in the delivery room. That also meant that when his CDH was diagnosed my husband was not with me. Again I'll say thank God for Dr. Childs. He was very supportive and informative throughout all our visits during and after Rick's hospitalization. It was our loss when we moved a few years later. I also found the staff at Hershey to be unbelievable. They would explain things at every visit and phone call. However, the one thing missing was any kind of support group of parents who had gone through this. I'm so glad that with the computer age we will be able to reach more families going through this. That's why I joined "CHERUBS" as a state rep. I sincerely hope anyone who needs to talk--night or day--will feel comfortable enough to call me.
Written by Rick’s mom, Brenda L. Eaken (Pennsylvania)
2000
Back in 1974 I became pregnant for the second time with my son, Rick. Our first, Jennifer who was only 7 months old at the time, was healthy and a joy so we were thrilled with the idea of another baby so soon. I thought my pregnancy was normal until my 8th month. Since my obstetrician must have also thought things were fine, no tests were ever ordered. I found out later that I had developed polyhydramnios during pregnancy, which would have accounted for my large weight gain and trouble breathing. But other than that, I always felt excellent during both pregnancies and didn't even experience morning sickness.
About five weeks from my due date I started having what I thought were Braxton-Hicks contractions in the middle of the night. Since they were coming irregularly I waited for a few hours. They suddenly stopped and I fell back to sleep. Upon waking in the morning I phoned the doctor to inform him. He suggested making my next appointment in ten days rather than two weeks. Oh boy, such concern! When I was examined he told me I was already half dilated and told me to go home to bed. Why I wasn't hospitalized, I'll never understand. But at the time, I was young and naive and thought all doctors were saints. Three days later my water broke and I immediately went to the hospital. After a few good contractions, Rick was born about four hours later following a natural, no med delivery as his sister was. He was instantly found to have a problem (he was bright blue). I was allowed a quick kiss and he was whisked away to the pediatrician. The pediatrician on call that night first thought it was a collapsed lung and ordered x-rays. Upon viewing them, he identified his problem as CDH. Thank God for Dr. Robert Childs of Hazleton, PA. He had just finished his residency at Hershey Medical Center where he had seen numerous cases. The decision was made to transfer Rick there. Unfortunately, it was a very foggy night and the State Police helicopter was grounded. So Dr. Childs accompanied the ambulance crew and Rick's Dad, all the while monitoring and squeezing the ambu bag to assist Rick's breathing. The doctor in charge of him at Hershey, Dr. Shochat, performed surgery on him at nine hours old. We were told he had a 10% chance for survival. Without getting into all the details here which would lengthen this considerably, I'll say that after a rocky start Rick slowly improved and was discharged home to us after seven weeks. He only had one other surgery at four weeks old. In the beginning his left lung was only a "bud" and since he had high concentrates of oxygen they couldn't tell us what the future held. But we didn't care. They told us to take him home, love him and allow him to grow and act as any other child. Loving him was easy and luckily, we were blessed with no other long-lasting effects from the CDH. After only a few checkups at Hershey it was found that his left lung had expanded and he has no vision impairment from the oxygen.
Throughout his childhood Rick behaved as normally as any child I've seen. He was a healthy, intelligent, handsome, loving boy who grew to a man with the same attributes. We've just enjoyed a year of having him home with us after serving six years in the Navy aboard an aircraft carrier. Having him home completes our family again with his 26-year-old sister and 15 year old stepsister. I am truly blessed to have such a great husband and family.
At the time of Rick's birth, birthing partners were not allowed in the delivery room. That also meant that when his CDH was diagnosed my husband was not with me. Again I'll say thank God for Dr. Childs. He was very supportive and informative throughout all our visits during and after Rick's hospitalization. It was our loss when we moved a few years later. I also found the staff at Hershey to be unbelievable. They would explain things at every visit and phone call. However, the one thing missing was any kind of support group of parents who had gone through this. I'm so glad that with the computer age we will be able to reach more families going through this. That's why I joined "CHERUBS" as a state rep. I sincerely hope anyone who needs to talk--night or day--will feel comfortable enough to call me.
Written by Rick’s mom, Brenda L. Eaken (Pennsylvania)
2000