Dawn Torrence Ireland
02-29-2012, 12:58 PM
CDH Awareness
April 19th Parade of Cherubs in Washington DC
International Congenital Diaphragmatic Hernia Awareness Daily Celebration
Join us as we march in the Parade of Cherubs from the Lincoln Memorial to the Washington Monument to Capitol Hill where we will meet with Congress and raise Congenital Diaphragmatic Hernia Awareness as well as support for the CDH Research Bill. Everyone is welcome to participate.
REGISTER HERE - http://cdhawareness.eventbrite.com/
When - Parade starts at 10:00 am at the Lincoln Memorial in Washington, DC on Thursday, April 19, 2012. On Friday, April 20th we will visit the White House.
Where - a full parade route will be posted soon, as well as information on stops on the DC Metro so you can park and ride into DC.
What - we will march 2.7 miles from the Lincoln Memorial to the Washington Monument, past the White House to Capitol Hill. At Capitol Hill, we will tour and meet with Senator Jefferson Sessions, sponsor of our CDH Research Bill. Along the parade route we ask everyone to sing the "CDH Kids Song" (video below) and will ask some to carry Save the Cherubs posters to help raise CDH Awareness.
CDH AwarenessWho Can Participate - anyone who wants to raise CDH Awareness. You MUST register with us to participate! You MUST fill out a form (to be posted soon) before February 29th for us if you wish to tour the Capitol and White House with us.
What to Wear - CDH Awareness gear, the official CDH Awareness Ribbon. All children are encouraged to wear wings. Wings stand out better on bright colored clothes. Wear comfortable walking shoes! For the White House visit on Friday, please also wear CDH Awareness Gear!
What Not to Wear - Anything trademarked or copywritten materials or phrases. No turquoise please.
Wings - you can borrow wings at breakfast at the hotel at 8:00 on April 19th or purchase your own wings at http://www.savethecherubs.org
Accomodations - we are currently working on hotel discounts. They will be posted by February 20th.
Special thanks to Mandy Sroka Photography for being our official photographer for the even, Chic Events Productions for all their planning help and Alarm Security for sponsoring the wings!
Please NOTE - by participating you give CHERUBS full permission to take and use photos in our charity literature, with the media and to raise CDH Awareness!
CDH Kids Song
I'm a real live cherub but I don't have wings
When I was a baby the doctor had to fix things
My tummy was in my chest and it was hard to breathe
He put it all back and here's where he fixed me!
Congential Diaphragmatic Hernia Research Bill
In support of research funds for the severe birth defect, Congenital Diaphragmatic Hernia.
Sponsor - Sen. Jefferson Sessions
CDH affects 1600 babies in the United States every year, with a 50% mortality rate. It occurs when the diaphragm fails to fully form, allowing the organs into the chest cavity and preventing lung growth. The cause of Congenital Diaphragmatic Hernia is not known. There is very little research on CDH, even though it is as common as Cystic Fibrosis and Spina Bifida. More research funds are desperately needed and we are appealing to the United States government to help these babies.
Look Up Your Congressmen To find his / her mailing address
Download Letter to Send To Your Senator / Congressman
Include The CDH Research Bill and a photo of your cherub
Sign the CDH Research Bill petition and ask others to sign as well!
Event Registration Online for 2012 Parade of Cherubs in Washington DC
Free Facebook Cover Banner:
CDH Awareness
CDH Awareness
Order commemorative CDH Awareness Gear
Feel free to download this shirt graphic to raise CDH Awareness:
Congenital Diaphragmatic Hernia Awareness
REGISTER HERE - http://cdhawareness.eventbrite.com/
April 19th Parade of Cherubs in Washington DC
International Congenital Diaphragmatic Hernia Awareness Daily Celebration
Join us as we march in the Parade of Cherubs from the Lincoln Memorial to the Washington Monument to Capitol Hill where we will meet with Congress and raise Congenital Diaphragmatic Hernia Awareness as well as support for the CDH Research Bill. Everyone is welcome to participate.
REGISTER HERE - http://cdhawareness.eventbrite.com/
When - Parade starts at 10:00 am at the Lincoln Memorial in Washington, DC on Thursday, April 19, 2012. On Friday, April 20th we will visit the White House.
Where - a full parade route will be posted soon, as well as information on stops on the DC Metro so you can park and ride into DC.
What - we will march 2.7 miles from the Lincoln Memorial to the Washington Monument, past the White House to Capitol Hill. At Capitol Hill, we will tour and meet with Senator Jefferson Sessions, sponsor of our CDH Research Bill. Along the parade route we ask everyone to sing the "CDH Kids Song" (video below) and will ask some to carry Save the Cherubs posters to help raise CDH Awareness.
CDH AwarenessWho Can Participate - anyone who wants to raise CDH Awareness. You MUST register with us to participate! You MUST fill out a form (to be posted soon) before February 29th for us if you wish to tour the Capitol and White House with us.
What to Wear - CDH Awareness gear, the official CDH Awareness Ribbon. All children are encouraged to wear wings. Wings stand out better on bright colored clothes. Wear comfortable walking shoes! For the White House visit on Friday, please also wear CDH Awareness Gear!
What Not to Wear - Anything trademarked or copywritten materials or phrases. No turquoise please.
Wings - you can borrow wings at breakfast at the hotel at 8:00 on April 19th or purchase your own wings at http://www.savethecherubs.org
Accomodations - we are currently working on hotel discounts. They will be posted by February 20th.
Special thanks to Mandy Sroka Photography for being our official photographer for the even, Chic Events Productions for all their planning help and Alarm Security for sponsoring the wings!
Please NOTE - by participating you give CHERUBS full permission to take and use photos in our charity literature, with the media and to raise CDH Awareness!
CDH Kids Song
I'm a real live cherub but I don't have wings
When I was a baby the doctor had to fix things
My tummy was in my chest and it was hard to breathe
He put it all back and here's where he fixed me!
Congential Diaphragmatic Hernia Research Bill
In support of research funds for the severe birth defect, Congenital Diaphragmatic Hernia.
Sponsor - Sen. Jefferson Sessions
CDH affects 1600 babies in the United States every year, with a 50% mortality rate. It occurs when the diaphragm fails to fully form, allowing the organs into the chest cavity and preventing lung growth. The cause of Congenital Diaphragmatic Hernia is not known. There is very little research on CDH, even though it is as common as Cystic Fibrosis and Spina Bifida. More research funds are desperately needed and we are appealing to the United States government to help these babies.
Look Up Your Congressmen To find his / her mailing address
Download Letter to Send To Your Senator / Congressman
Include The CDH Research Bill and a photo of your cherub
Sign the CDH Research Bill petition and ask others to sign as well!
Event Registration Online for 2012 Parade of Cherubs in Washington DC
Free Facebook Cover Banner:
CDH Awareness
CDH Awareness
Order commemorative CDH Awareness Gear
Feel free to download this shirt graphic to raise CDH Awareness:
Congenital Diaphragmatic Hernia Awareness
REGISTER HERE - http://cdhawareness.eventbrite.com/