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Dawn Torrence Ireland
01-01-2013, 01:01 PM
Registration and more information at http://www.cdhconference.org

Join us in Boston, Massachusetts for the first ever joint Medical and Family conference for CDH!

Hosted by CHERUBS, Massachusetts General CDH Study Lab and Boston Children's / Harvard University.

The Inn at Longwood Medical
342 Longwood Avenue
Boston, MA 02115

Stay tuned for details!

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Tentative Itinerary:


~~ Family Conference ~~

Wednesday, July 10th - Pizza Party/ Dinner
* Family Introductions
* Parade of Cherubs

Thursday, July 11th - Research Day
* Medical Speakers
* Medical Q&A Panel
* Free Genetic Testing
* CDH Lab & Clinic Tours

Friday, July 12th - Awareness Day
* CDH Research Bill
* April 19th
* Volunteering
* Fundraisers

Saturday, July 13 - Support Day
* Round Table Discussions
* Kids CDH Song Performance
* Family Conference Conclusion



~~ Medical Conference ~~

Tuesday, July 9th - Research Presentations
Poster Presentations & Display
Vendors

Wednesday, July 10th - Round Tables / Panels
Evening Pizza Party at Parent Conference
Parade of Cherubs
CDH Research Bill
Vendors

Thursday, July 11th - Medical Speakers at Parent Conference
Medical Panel at Parent Conference
Vendors
Medical Conference Conclusion

*** parents will not be allowed at the Medical Conference. It is strictly medical researchers and staff only. Please hold all questions for the Medical Forum and Presentations at the Family Conference.

HOTEL INFO:

Here is the booking instructions for the CHERUBS conference in July. Please get the word out, we have 40 rooms available and they should sell out that weekend.

The Inn at Longwood Medical
342 Longwood Avenue
Boston, MA 02115

We have a limited number of rooms so please book early if you plan to attend. Please call the hotel directly at (617) 731-4700 and ask for the CHERUBS rate of $189 on July 10-13th before the cutoff date of June 1st, 2013. Any bookings made after June 1st will be subject to the hotels prevailing rate (Average rate for those dates on 12-20-2012 is $288). Rooms may be cancelled without penalty up to 72 hours prior to arrival.

KarenMyers
01-01-2013, 01:50 PM
Can\'t wait!

ClairMaher
01-01-2013, 04:19 PM
see you all in July :) Boston here we come

Chris and TracyMeats
01-01-2013, 05:44 PM
If you have not had a chance to ever attend one of the CDH conferences, please try!!! You learn so much, meet wonderful people and lifelong friends and overall is a wonderful experience.

This conference sounds amazing!!

Chris and TracyMeats
03-12-2013, 02:16 PM
http://2013cdhconference.eventbrite.com/#

Please register at the above link, if you are planning on attending the conference in Boston this year!!

Dawn Torrence Ireland
03-12-2013, 04:10 PM
Thank you, Tracy!

freedom
03-13-2013, 12:20 PM
Thank you so much for all your hard work on getting this set up. The Green family is still trying to figure out how to make it happen for our family of 6. Keeping my fingers crossed. I've always wanted to go to one of these events.

KarenMyers
03-13-2013, 03:56 PM
I am registered!!!