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Laura Webster
01-22-2015, 10:34 PM
Our daughter was born 8-15-91 after a hard pregnancy, we had a miscarriage just before our daughter. I bled during this pregnancy and was on rest most of the pregnancy. We had no idea there was anything wrong with our child. We went into labor. 4 weeks early and when Christina was born she was diagnosed fairly quickly and transported to another hospital within hours. Her surgery was scheduled for the next day. When the tube came out a few days later she developed complications and could not be fed formula with fat in it. She had chest tubes on both sides. Weeks later we thought we were in the clear and a weekend staff fed her the wrong formula and we were back to square one with more chest tubes. Finally at 2 1/2 months they let her come home. After many protests from us she was ready. They did the best to scare us and have her stay another 3 weeks. I just couldn't As it went she gained 13 ounces her first weekend home and did well after that. Very picky eater unsettled and couldn't soothe. Up a lot and took a lot of our energies but we were glad to have her. At 12 she had surgery again
Because of the chest tube scars were so bad they had to open all of her scars and release them for the muscle and repair them all. She was sick for days. Thank God she is a healthy 23 year old woman today. Graduated Summa cum laude with a double major from college. One bright young woman who takes advantage of what life has to offer. She lives her life to its fullest. At one
Point she told us she lives for those who didn't. She is an
Inspiration . Our Christina, our
Miracle

Chris and TracyMeats
01-23-2015, 02:52 PM
Thank you for sharing your journey and precious daughter with us. Sounds like she is a fighter and a precious miracle. That is wonderful she is doing so well and what an accomplishment she has made in college, you must be so proud of her.

That is horrible on the chest tube scars. My son's chest tube scars are so awful, nothing like his CDH repair or ECMO scars.

I wish her well with everything she does.

AmandaPlakholm
01-26-2015, 10:46 PM
thank you Laura for sharing Christina's story with us. Sounds like she has always been a strong person and very thoughtful. I hope she continues to do great things!
My daughters chest tube scars from her most recent surgeris are awful, never knew they could become an issue down the road.

amycschlueter
01-30-2015, 02:42 PM
Thank you for sharing your story! I am almost the exact same age as her! I was born 08/04/1991! I am so glad she is doing well!

HeidiForney
02-09-2015, 01:33 PM
Thank you for sharing your story! :) These CDH fighters truly are amazing.....