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I was born with Severe CDH but with Left Lung Hypoplasia. Left lung was 1/4 in size out of 100%. and 0 left Diaphragm muscle. Until after few plastic mesh placements as I aged. Will be 23 tomorrow. Next year will be 10 years of last diaphragm hole repair.
Thank you for telling me your story it helps alot because everytime I see the different doctors our survival rates keep going down. I am trying my hardest to keep my hopes high and continue praying for a miracle. The scary part is they think she is missing the left side of her heart and also her stomach is right next to her heart. Everyday I feel her kick and everyday I continue to believe that whatever happens in July is all gods will. Thank you again and I am so glad your son is doing well
Dear Stacey, My son Dvij was born with Cdh. He had a left side her ia with intestines and liver in his chest. Since it was a left side hernia, the left long did not have any space to grow and the heart had moved to the right side. This wasn't detected during scans and was diagnosed only at birth. He under went a surgery on day 2 of birth. It was a testing phase for us. But being the champ that he is, he overcome all his challenges. We got him home in about 20 days. He is doing amazing ever since. He is 4 now and is awesome at school. I want to tell u that miracles do happen. Pls have faith. Be there for your daughter. She can do wonders with her mother by her side. My prayers are with you and the baby. Hope this helps. Love Anita
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