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  1. Both hyplastic left heart syndrome and cdh

    Yesterday I meet with the neonatologist and he told me my baby has a zero percent chance of survival after she is born. Because she has two diagnosis that work against each other. I am trying to find at least one person who has had a baby with both. So far I have been unable to find any research or anyone who knows about both conditions. the doctors are really pressuring me to make a decision now before baby is born so we can have a plan. But I want to fight but part of me feels like I should enjoy ...
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  2. looking for advice and information

    I recently had my first echo on baby at 25 weeks. The doctors are telling me that they think she has only one side to her heart. And that her survival rates are much lower when she is born. I don't know if there is someone who has had a baby with cdh and a very serious heart defect survive. My daughter has a left side hernia with her intestines, stomach and part of her liver in her chest. I will have another echo done at 28 weeks. Can someone please give me some hope. I pray that maybe because her ...
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