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  1. ChristineP's Avatar
    Hi Shawnay,

    I know hearing about the diagnosis for the first time can be scary. All of a sudden your in for more appointments than you intended and a few different doctors speaking to you about your son. When doctors found out my son had CDH, it was a difficult process. Please always remember to never give up and ask as many questions as humanly possible. My prayers are with you. Try to take it easy the best way you can, no extensive bending or moving. I always sung and read to my son. Before I met with a more specialized team, i did some research on what CDH was and compiled a list of questions. This would be best to do so you don't go into the doctors office blind of knowing what is wrong. Ask them how extensive the CDH is, more importantly ask if both lungs are still forming correctly. I wish you the best of luck and if you need anything, please dont hesitate to contact me.