Blog Comments

Carrie, I know what you mean Adam is 10 and August is a hard month for me. I look at him and just can't believe all that he has been through and fought in his short little life. It always leaves me with a since of wonder and joy but the memories are still hard. Some of our greatest joys come from our deepest pain so keep remembering and find the joy!

Thank you for sharing this Carrie. I especially liked lil CHristian's picture. Way to go, young fella!

Fingers crossed here too!! That would be fun! I know my son loves when we get to attend the CDH events and meet other kids "just like him".

Tracy - I got a call today that the appt was moved to the 22nd. So, now I am trying to make a vacation weekend of it if I can talk my husband into it. Gainesville is about 6 hours away without stops. Then, hopefully, we can participate in the parade and do our doctor visit on our way back home Monday. *fingers- crossed*

Thank you for such a wonderful update!! Christian's story is full of hope and I love that he is doing so well. I really hope you have a good appt. in April. Keep us posted! You are going to miss the parade on April 19th....our FL reps. are doing a parade with Dr. Kays and staff for CDH awareness on April 19th. Are you very far from the hospital?

Keep going strong Christian....you are an amazing kiddo!!

Thank you Jessica! I hope all goes well for your daughter's repair. I will keep your family in my prayers.

Great news! My daughters birthday is hard for me as well, she is only 19months right now. It seems as though a lot of "memorable" things with my older 2 kids bring me back to the NICU. Sorry to hear about re herniating I wasnt aware this could happen. However my daughter has to have her CDH re-repaired in a few weeks cause her body has "rejected" the material used for the original repair. They are taking some muscle out of her shoulder to fix it. I hope after this I can say the same thigns as you. I'm glad you have a fairly healthy little boy out of this all. Good luck in April!!! <3