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  1. 10 MONTHS

    10 MONTHS AND DOING GREAT!!!!MY OLDER DAUGHTER WAS ASSKED TO DO A RESEARCH REPORT AND SHE TOLD THE TEACHER SHE WANTED CDH. SHE SAID THE TEACHER'S EYES WATERD AND THEN SHE SAID HER NEPHEW HAD CDH AND LIVED 16 PRECIOUS DAYS. I THINK AT THAT MOMENT MY DAUGHTER REALIZED HOW LUCKY WE ARE.
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  2. colds

    7 months, but seems like 4 years. so after the worlds longest colds both of my sons were diagnosed with asthma and put on a nebulizer, that seeemed to really help. he is doing great now trying to walk, he has two new teeth, full of energy and the determination to not let anything get in his way. He gets what he want or he keeps trying, he is my little hero.
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  3. small lungs

    so we had our 5 month check up and everything is fine, then we had a pulmonary visit at Childrens and the doctor asked if there was any choking, faster breathing etc and I said none of that. so since she couldnt find anything to report she lookes at me and says, well you know your son most likely has smaller lungs than normal babies and he breathes faster, and he will probably have troube running in sports. DUH!! I hate going to these appts because it seems like just when I have my head wrapped ...
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  4. just getting it off my chest

    Mekhaai is 3 1/2 months now, he is rolling everywhere and army crawling on his belly!!! I was tickling him and he was just cracking up and blowing bubbles and it dawned on me, he is not this exotic,delicate little bird made of glass, he is a normal baby. I know it sounds bad, but I didn't even know I was treating him like that. I would always hold him gently and quietly, kiss him gently and talk gently and love on him from sun up to sun down and my routine was to check his tummy for I dont know ...
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  5. just getting it off my chest

    I love to lay my face next Mekhaai's face at night while he is asleep and I can feel his sweet little breaths hitting me. It helps me sleep better knowing that he is right there alive and well. I think of all the parents that have lost their babies to CDH and I just feel this awe like im in the presence of something magical, my son, who i was told to have an abortion with to save myself the pain of losing him at or before birth is laying here next to me. How am I so lucky, why me and not them, ...
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