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  1. GertrudeEvelyn's Avatar
    Hello Stephanie , my prayers goes out to you and your family. If you don't mind me asking what is the difference with the patch and laparoscopic repair. My daughter has the patch and I worry all the time. I know I should keep the faith but I am always concern about the patch moving etc. I am not sure what will out me at ease, she has another follow up in October she is only 11 months on 9/25. Any information would help, wanting to know the likely hood of this happening.
  2. JadeHunt's Avatar
    Stephanie,

    Sending you, your family and Niklas many prayers and support! If you ever need anything, don't hesitate to reach out. God bless each of you!

    Blessings,
    Jade Hunt
    Mother of Angel CHERUB Liam "The Lion" Anthony Hunt
    (05/22/2011-06/25/2011)
  3. Chris and TracyMeats's Avatar
    Stephanie, it is so good to hear from you! Please post this question under the forum section too, under the survivors is fine or any other topic you think it would fit. So many of our parents forget these blogs are here and they are not read as much as the forum threads are. I am sure others would have some advice too.

    I am so sorry to hear Niklas has reherniated. That is great he is not showing any symptoms of a reherniation. Is he in any pain? Affecting his breathing or eating that you notice? I too would be concerned about leaving it, but UCSF have well known doctors in the CDH field. With only a knuckle portion of spleen and colon up, the hole must be very small. I have heard of doctors waitng to do the surgery for a child to grow and gain weight, makes it easier to recover from a big surgery. In older kids, when the child is not showing symptoms, the surgery will not always happen immediately for different reasons.

    Just watch him for reherniation symptoms (breathing issues, eating difficulties, bowel obstruction symptoms, vomiting, he is in pain, ect...)....but I imagine the doctors are just wanting Niklas to be stronger for another big surgery. How often will they be checking him now that they have found the reherniation?

    Praying for Niklas! He is so much stronger this time around, when the time comes for surgery, he will do great and the recovery will be so much easier than his NICU recovery.

    (((HUGS)))