mandymorena

It seems each time the weather changes, which is like every week, Axel gets a cough and congestion. I worried so much he might get worse and we would have to go back to the hospital and stay a few days. But luckily with a few puffs of his inhaler he breathes a bit easier. But I know this is going to be our routine till spring comes around. Then the heat which Axel does not tolerate well.
Axel has ot and pt. He does well in both. Just that in PT he shows no interest in crawling on the ...

One year ago today After many hours of waiting and one good push AXAEL LYXANDER VEGA came into this world, without a sound and not moving, to turn my world upside down. At 5lbs. 10oz. and 9 inches long he had all odds against him. He was diagnosed with Right Congenital Diaphragmatic Hernia, Congenital Heart Disease, Persistent Pulmonary Hypertension of the Newborn, Low Muscle Tone and a great other things. After 4 months in the NICU, 5 surgeries (On ECMO, Hernia Repair, Off ECMO, Open Heart Surgery, ...

this past week Axel got the sniffles. but with Axel it's just never plain sniffles. We had to be taken by ambulance the second day of his sniffles due to low O2. He was SATing 75, 76. His pulmonary doctor didn't even have to see his chart, she just said you're not leaving here today. He was admitted put on antibiotics, high plow cannula, and steroids. by the next day he was off his oxygen and feeling a lot better. We were sent home that afternoon with a few meds and told to be kept inside. He's ...

Halloween was great. Axel got some candy and when he got tired and we followed the group we were with in the car, his big brother took his pail and asked for candy for him. How sweet. The beginning of November has gone great so far. Looks like he really wants to start crawling but his arms still need a lot more work. Today we saw the GI doctor for the first time. All I have to say is DR. J is great. No more formula now it's just pediasure. It has more calories and can give him more volume. The ...

It seems after being hospitalized Axel is out to prove the world he can do anything. His sitting solo was ok at best now it's great. His therapist said he would n't sit till after Christmas. He loves to watch Elmo. He started saying "BABABABABABA." I tell him "no" and he shakes his head no.He can play peek-a-boo(SO CUTE WHEN HE DOES IT). He's cut his first tooth. When I bathe him he wants to be in the toddler part of his tub and not reclining in the baby part. Most of all he ...