mandymorena

Two weeks ago Axel woke up sick. Just like that. I had always been told in the NICU that when he got sick, he would get sick 100 times worse than as other kid. My son had had a cold for a few days, but Axel had shown no signs of anything. Then just like that Thursday morning sick. Cough congestion, and fever. I tried my best to comfort him knowing they doctors don't give cough syrup to babies or small children anymore. Or anything for congestion. But when Friday morning came and I had slept not ...

Before my second son Axel was born I had never heard of Congenital Diaphragmatic Hernia. Shoot, when I went to google those awful words I didn't even spell them right. What could it be? What did I do? Why was my son born with that? Was he going to live?
But after 4 months in the NICU with the great doctors and even the more Awesome Nurses, on ECMO 6 days(day 2 - day 7), hernia repair at 3 days old, open heart surgery at 3 and a half months old, and finally g-tube placement right before 4 ...