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My daughter was born 2 yrs ago with undiagnosed LCDH and just gave birth to my son 4 wks ago. He was healthy and screamed bloody murder for a long time. It was so wonderful to hear him scream. I tried to stay positive and had an extra ultrasound at 33wks and a fetal echo done (my daughter had 2 VSDs with her CDH). Any, I did pretty well, a bit nervous on the days of the ultrasounds. I started to really get nervous towards the end of my pregnancy, but once I went into labor, it all went away. I was just so excited to see my new "little one." Try to stay positive. Take one day at a time, and enjoy each and every moment you have. Congratulations!!! I wish you health and happiness....

Thank u so much Jade :)

Joanna,

My heart, thoughts and prayers are with you! I am in the same boat, as June 25, 2011 will be 1 year since my Angel Cherub, Liam grew his wings! Please know that you are not alone and that I am here for you!

Take Care and God Bless,
Jade Hunt

Joanna,

First of all: Congratulations!!!!!

This is very exciting, yet I know anxiety-provoking news. I second what Tracy said in that you should find an OB with experience with CDH and birth defects. I wish you all the best and a very healthy, joyful pregnancy! Please do keep the folks at CHERUBS posted on how you are doing! We are all thinking of you!

Take Care and God Bless,
Jade Hunt

Yeah!!!! Congratulations!!!!!

(((HUGS)))....congratulations!!! Praying for a healthy baby and pregnancy for you. My best advice is to talk to your OB sooner and have them follow this baby more closely. Extra scans/ultrasounds and ask those questions during those scans. Have them point out the diaphragm and the location of the organs. It is very hard to not worry, even if you get the all clear healthy baby news, until you have that precious child in your arms and know everything is okay. If Bella's CDH was isolated, meaning it didn't happen with any other genetic abnormalities or syndromes, stats show a reoccurence of CDH to be 2%. There is a ton of research happening to try to figure out what causes CDH, but there just is no definite answers on whether it is genetic or not. CDH can occur with certain syndromes and genetic abnormalities. I would make sure you find an OB experienced in CDH and no what they are looking for you (I am not sure if Bella's was diagnosed before birth). Take care of you and that precious baby. There is nothing you did to cause Bella's CDH.

(((HUGS)))...keep us updated on the pregnancy....sending you tons of baby well wishes your way.

What type of proclamation? If is was for something like on April 19th for the International day of CDH awareness, I think somebody got one for TX in 2012. Would have to ask Dawn for sure. You have to go to your governments website for the state and usually the proclamation section is under the governor links. It will list the requirements and directions on how to apply for one. Next year, for 2013, we need to start getting these early for April 19th, probably start in January 2013. Will you be seeing Dawn this weekend at the Alamo, for the get together? You could ask her there.

Sending you hugs and healing prayers as I watch our daughter & son in-law dealing with the 1 year Angel Anniversary for their Angel CHERUB, Liam.

My hearts breaks for all parents & families.

God Bless you & your family always,

Maria
Nonna to Angel CHERUB Liam ("The Lion") Anthony Hunt

Thank u so much Heidi Isbell

I couldn't imagine how u feel but i have the same problem with copeing with this even though my sons is doing good i am not taking this good at all, i sit and cry thinking everyday he could leave be, i even lose sleep cause i stare at him to make sure he breaths... but i hope one day for u to have comfort in ur situation and know u are a strong woman to deal with losing ur angel because that is what he is a angel...more hugs

Thanks Tracy :))

(((HUGS)))