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  1. Big Bad Mean ECMO

    Prayers please...Avarey is doing well this morning but she has to have a few procedures which are risky! With taking the fluid off it has caused a space between her windpipe and breathing tube...they now have to change her to a bigger breathing tube. This means moving her neck with the blood tubes in...and with being a blood thinners this could cause bleeding. Also they are not pleased with the artery line in her left leg and will be pulling that and placing it in her right leg. Once again this ...
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  2. "I'm not there yet, but I am closer then I was yesterday"

    Avarey Grace Champagne has to be the toughest girl I know! ONE week old and she has already been poked, prodded, and put on big bad ECMO! But she is two days on ECMO and kicking booty! The doctors are pleased with her numbers and are already talking about weening her off in about two days! PRAISE GOD...I know we are not out of the woods yet but we have hit a clearing And as it is with all CDH babies you celebrate the good days and take the bad days with stride! Avarey's brain ultrasound came ...
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  3. Bad days mean beter days are just around the corner...

    Been kinda a down day...Avarey stayed stable all night but started having blood pressure issues throughout the day. She is now back on her paralysis medicine because she was becoming to active and trying to breathe on her on and upsetting this vent. All of this led to her blood pressure dropping. She has been added to another blood pressure medicine, but they are weeening her off of one of the stronger bp meds. So we are up to 3 bp meds for the night, but hopefully down to one in the morning! The ...
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  4. Avarey Grace Update!! <3

    Ok...big update on Avarey...first of all thank you for every last thought prayer question well wish and concerbs...it is amazing to see how many peoples hearts Avarey has touched...she sure has grabbed a hold of ours...Kevin and I are so thankful to be blessed with such amazing people in our lives...thank you!! Now the princess has had a great day!!! They kept ger on the jet vent instead of switching to the traditional bc right now it is gentler on her...they have completely turned her paralisys ...
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  5. Avarey Grace Champagne~Mommy's Angel



    Where do I even start? This is the first time I have ever done anything like this, and trust me, I'm a rambler so this may take a while. My Avarey Grace is coming Feb 8th or 9th of 2012 and I couldn't be more excited and scared. My Fiancee, Kevin, and I first found out about Avarey's CDH on Sept 9th 2011. Let me tell you, there is nothing like seeing your first baby for the first time, then being told it's a GIRL , and then being told there may be a problem. Talk about something ...
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