Blog Comments

Praying for Avarey! Hope her procedures are going well today!

Praying for Avarey...strong and stable days!! Hope ECMO is what she needs to get over this hump and get to her surgery repair.

You Go AVAREY!!! May God continue to bless you and your family. <3

Praying for you and your little girl, that she is down to 1 BP med by morning and has surgery soon.

Kara

Praying for Avarey Grace! One day at a time and cherish every moment with your baby girl. She is a fighter and I hope she keeps making progress in the right direction. The mentioning of surgery all ready is a good thing! Strong and stable days Avarey!!

(((HUGS))) and stay strong for your baby girl!

That's wonderful news. Praying Avarey Grace continues in the right direction and that sweet baby girl will stay strong.
Thank you for the update.

Strong and stable days Avarey Grace!! That is wonderful surgery has been mentioned. Fight baby girl fight. Praying for strength for your princess.

(((HUGS))),
Tracy, Ian's mom

Praying for Avarey and strength for you. Love that baby girl and cherish every day with her. Believe in the strength of your baby girl. I pray you are surrounded by much love this holiday season and feel the love from your unborn daughter. (((HUGS)))

LeighAnn,
Your entry brought me to tears, as I know exactly how you are feeling. I have thought those same thoughts, had those same feelings, and cried that many tears. My son, Liam passed away on June 25, 2011. He was one month old. He was born with CDH, though we had no idea he had this birth defect. For nine months, my husband and I had doctor after doctor tell us that we were having another perfectly healthy baby boy. When Liam was born, our excitment turned into complete devastation and shock.

Liam was at Children's Hospital Boston and was doing rather well. He suddenly took an odd turn. He nurse thought he had an infection- she was right. The infection was bigger than any antibiotic and five days later, Liam was gone.

You are right in that 1,000,000 things can go wrong- this is true for any pregnancy. I guess as parents, we assume the risk. I want you to know that you are not alone and that there are many mom's like myself who are here to offer any and all support we can. Please don't hesitate to contact me. I try to write a blog on Liam's page once per week, but I'm making it a priority to do this every day. It's becoming therapy for me, and helps me to feel closer to Liam.

My thoughts and prayers are with you, Avarey and your entire family! God Bless and take care of yourself!

Jade

Hi, I understand how you are feeling. Although this isn't my first pregnancy I am still feeling all the things you have written. I'm due with my son Caleb on January 23 but am told I will probably be induced a week early just so everyone is prepared. This is a scary thing to be facing and the hardest part seems there are no "real" answers until the baby is here. All of the uncertainty is hard to deal with sometimes. I completely understand how you feel anout keeping your daughter safe inside for as long as possible, for me the time just seems to be passing too quickly. Just know that even though you might feel alone there are others who understand and can relate. I will keep you and Avarey in my thoughts and prayers daily.

Kara