Blog Comments

I'm not sure what all is going on with her however I think I would let my daughter as long as the Dr said its safe.....she struggles enough dont make her miss out on the fun!!

Thank you for sharing. Looking forward to hearing more of your daughter's story. It had to be hard for you not being able to really share during the hardest days.

There is definately hope, its a lifetime disease and I seem to learn more each day but its worth it. I hope all you questions and concerns can be answered.

Surgery took place May 1st and although this is her 3rd nissan it isnt any easier. She cant eat more than a few tablespoon of liquified foods and is asking why cant she just be normal. I am struggling with the right words, as everything i seem to say is wrong

I am glad to read ur story and know that i have many questions my son is 5 months old and i have been so worried even though he is ok i cant seem to get pass the whole situation and i have research so much and kept saying well maybe it was this or that but never knowing is even harder to understand but know others that has went through this longer would help me by knowing there stories and how they cope with it each day..

Praying the surgery goes well. Update us when you can.

Sending prayers of healing for your little one.

Maria
Nonna to Angel CHERUB Liam ("The Lion") Anthony Hunt

Welcome to CHERUBS Therese! We would love to hear more about your precious miracle and yourself. You have found a wonderful support group and anytime you need to talk, ask questions or just want to share the good news on your daughter's accomplishments, we are here for you and cheering her on!!

Tracy, Ian's mom (born 4/3/04)