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(((HUGS)))....remembering your precious Henry today.

So glad your Christmas was the best it could be! I am also glad you took those needed moments to feel and just "be." I was so caught up in the family drama that I feel I missed doing that. Makes me even more angry that I missed those moments thinking of my baby girl and was instead caught up in things that just don't matter. Since, I have really been struggling. I am trying some new things like 1:1 counseling, rake, allowng myself to just lose it when I feel like losing it, etc. Will let you know how it all works out. I hope your next steps with the geneticist goes well. Please keep me posted and feel free to reach out if you want to vent, etc. I will also let you know how my new book is working, The Bereaved Parent. It should be arriving any day and I am anxious to read it.....sort of. xxoo

i am so sorry to hear your christmas was so rough. ours actually went a lot better than i expected. i said to hell with presents this year and got evryone on my list giftcards. We had five family functions over the span of four days, crazy. We did not linger anywhere and I saved all my crying for after the last function, when I was back home, safe.

I did not read that book yet. It's sitting on the table next to where I sit and for some reason I just can't start it.

I do not have any children and yes I do think about trying again. I will be 36 in may. We are first gonna talk to a geneticist. Fryns has a 25% chance of happening again and I just don't know how to handle the next pregnancy. Extra cautious with a bunch of tests can't guarantee a healthy baby.

Take care.

I hope you had a good Christmas! Ours was a disaster. On top of losing our daughter and really grieving for her on Christmas, my husband and visiting sister could not get along. Not good. Still so disappointed in everyone and their inability to think of our daughter instead of themselves. I guess everyone had high emotions..... I did finish Heaven is For Real. Did you? Did you like it? I found some comfort in it but as you stated in your last message, nothing can alleviate all the pain and frustration of our lost children. I just started going to a therapist and she recommended a book called The Bereaved Parent. She said it is out of print but can be found on Amazon. I will let you know how it is. I am hoping the counseling will help. I told her I just want to grieve in a healthy manner while finding a way to honor our daughter. Tough thing without a doubt. Still having good days and bad days. Planning to stay home from work through January and then head back in February. Do you have other kiddos? I don't know about you but I think about having another baby A LOT. I know another child would NEVER replace Ari but I do want to add to our family. Hard as I am 41 and don't feel I have a lot of time to think it over..... Well, I look forward to hearing from you. Hang in there and know you and your son are in my prayers now and always! XXOO

I too read empty cradle, broken heart. I also read A silent sorrow and trying again. All very informative but didn't magically make me feel all better like I'd hoped. I also read a memoir by Elizabeth Mccraken called 'An exact replica of a figment of my imagination'. It was somewhat comforting to read about someone else's experience. And I am getting ready to start reading Heaven is real. A true story of a little boy who recalls his time in heaven.

Take care.

I hope this note finds you well. I think the goal at this point is to try and have more good days than bad. That said, when tears start to fall THEY FALL HARD. I think I cried all day yesterday as I just could not stop thinking about our sweet baby girl. So sad without her but I am working on coming to terms with that daily. Like you, I purchased a cross locket to wear so I keep her close also. She had long curly hair so I have some of that inside of it. It makes me smile to think of those waves as I have curly hair too. As far as books, I did read I Will Carry You by Angie Smith. It is a wonderful book written by a mother who lost her baby girl. I felt so much commonality with her thinking. It is hard to read but very very good. I also read Empty Cradle Broken Heart (or vice versa). The hospital gave us that one. Pretty good. You can read only what applies to you on that one. I am still searching for another. My dad bought me When Your Child Dies. Just started reading it today. Very clinical but interesting... I wish I had the answer to such heart ache and loss. I know I would give about anything to have my little one back and yours too! XXOO

Thank you very much ladies. I appreciate you reaching out to me. And I am sorry for your losses.

I am still feeling a lot of heartache but taking it day by day. Some days are good and some are bad. Being so close to Christmas is hard, which I am sure you know.

I bought myself a locket necklace to keep Henry close to my heart and have been doing some reading. I would like the name of the book you are reading. Thank you.

Carrie

Hey Carrie. I am so very sorry about the loss of your sweet baby boy. I beyond feel your pain as we just lost our little girl, Ari, on Oct 25th to CDH. She also had a heart abnormality which went previously undetected. I still can't believe she is gone. It has been nearly 4 weeks and I have to say my heart aches just as much today as it did then. We just plain miss her. I am doing a fair amount of reading and also a ton of praying. It is hard as I am anxious to feel better but also want to always honor my little girl in all I do. I am reading a book that talks a lot about the fine line between grief and joy. It also offers a lot of understanding and guidance. If you like I am happy to forward you the title. Also, if you need to talk, I am here. Happy to share my email and phone number if you like. Hang in there! Veronika

My heart goes out to you and your family.

May God surround you all with his loving arms providing peace, comfort and solace.

Sending healing prayers,

Maria Farnsworth
Nonna to Angel CHERUB Liam ("The Lion") Anthony Hunt

It's almost time for Baby's arrival!!!! Wishing you a safe delivery!

Sending many, many healing prayers and positive vibes from Vermont.

Will be thinking of you and your family.

Maria Farnsworth
Nonna to Angel CHERUB Liam Anthony Hunt

Sending many prayers and positive support from Vermont.

Maria
Nonna to Angel CHERUB Liam Anthony Hunt

That is great news Carrie! Praying for the best for you and your family! Get lots of rest!

Best of luck to you all!

Also they gave us a tour of labor/delivery and the NICU. Both were very nice. And we had a patient liaison who was with us all day. She was great.

I've got a new blog up. Thanks for your support!!

Thanks!

When are you due?

Originally Posted by VictoriaRogowski

look up fryns syndrome. or ask your doc about it. my son has CDH as well as a cleft lip. it could be t random things that just happen or fryns syndrome. but my doc says they cant really predict that now untill once he is born...

Thank you so much Sarah! I'll be updating my blog soon...

Originally Posted by SarahC

I'm sorry, but I don't know much about Cleveland Hospitals, but I have a daughter who was undiagnosed. Her stomach and intestines where in her chest and moved her heart over to the right also. She had two extra holes in her heart from pulmonary hypertension. One closed, and the other one we are still watching. I want you to know that your not alone in this. There is plenty of people who love to help and listen to you here. Olivia is doing well. she is two yrs old now. Her heart moved back to left side on its own after her surgery. I will be praying for your family. Please keep me posted on how things are going....

Thanks Jade!

I will be updating my blog soon....

Originally Posted by JadeHunt

Hi Carrie,

I do not have an experience with this hospital, but I wanted to send my thoughts and prayers your way! My heart reaches out to you and I wish you strength and courage throughout your pregnancy and beyond!

Take care of yourself and be well,

Jade Hunt

How did your appointment with Rainbow go?