Blog Comments

So very sorry to hear of your loss. Its such an overwhelming feeling. Hugs and Prayers to you from Louisiana!! If you need to talk, vent, yell, scream, or just cry I am here. Many of these women have helped me with loosing my son in December. Pease know that we are all here for you!


<3,

Alexis Prudhomme
Mom to an Angel!! William "Willie" Prudhomme (B&D 12/20/2012)

Kathryn,
I have not been on the CHERUBS forum in some time, but I visited today and felt a great need to reach out to you!

My heart and arms are reaching for you! I am so incredibly sorry for the loss of your precious, Delaney! Although I lost my precious Liam to CDH, each journey is so different and unique to each child and each family. Please know that there are many people, myself included, that are here to offer any support that you need. Prayers and support are being sent your way!

God Bless,
Jade Hunt
Mother of Liam "The Lion" Anthony Hunt (05/22/2011-06/25/2011)

My heart just breaks for you and your family. CHERUBS is a wonderful source of support as proven to my daughter & her family and myself as well. As we say in our family, each day will become a bit more bearable. Our Angel CHERUB Liam ("The Lion") Anthony Hunt was born May 22, 2011 and received his Angel Wings June 25, 2011. I never want another parent, grandparent, family member to go through such a terrible life tragedy.

Sending many healing prayers and positive support.

Maria Farnsworth
Nonna to Angel CHERUB Liam ("The Lion") Anthony Hunt

Oh I am so sorry to read this. I haven't been on here lately but I had a strong urge to check on you today. My heart is breaking for you right now. Please know I'm here for you if you ever need anything or just to talk. Waylon was born 3-3-13...Delaney 5-3-13. The third must be a popular day for angels <3 Praying for you.

Hey Kathryn,
I haven't been on here in three weeks... I was really thinking about you girls, and hoping for the best. It was a blessing going through this with you, I will be due in two weeks. Unfortunately and fortunately everything happens for a reason, that is what I try telling myself as well... and if things do go the other way for me I will eventually know that this whole experience has made me stronger, just like it will make you! I pray for you, and your family, and pray that when the time comes again you'll have an amazing healthy baby to hold, and be with for many years to come! Praying for you! xo

Thinking of you Kathryn, we are here for you. (((HUGS)))

(((HUGS))) Kathryn...I am heartbroken to hear this news. I was praying for her and her miracle. I even spent some time writing some words for her this weekend to send you and Delaney. I am so very sorry your little girl left this earth way too early.

We are here for you, please know we are praying for you and your family during the days to come. (((HUGS)))

Rest in peace Delaney Ann.

Are they checking your blood?? Checking liver levels, etc? This can cause you to seize..My liver levels started becoming elevated.

Keep us posted, I've been thinking about you!

Praying for Delaney and you. I am so sorry you were not able to get the tour of the NICU and meet the neonatologist, but better to avoid getting sick though right before delivery.

The swelling is no fun. The best thing to do is too put your feet up and elevate them some when you can. Hope your appts. all go well this week and Delaney keeps going strong.

(((HUGS))).

Originally Posted by CaseyFBarnhill

where are you delivering? and are you doing a C-section or Vaginal ? Just curious , because i'm doing inutero surgery this coming week to block Gavins trachea, which will give us 4 weeks to let his little lungs grow bringing me to 36 wks; however, I wanted to do a C-section so he doesn't have to go through anymore stress. Are they wanting you to do a C-section or vaginally ? and GOOD LUCK I've been following your stories since you're only weeks ahead of me!!!

I have to have a c-section due to the fact that I had my son by c-section because he was breech. He was perfectly normal and healthy but they wanted a c-section for ease with him. And in Oklahoma doctors will not do a vaginal birth after you've had a c-section once. Insurance reasons. So I find out Monday when they want to schedule the c-section and just hope I can make it til then

Way to go Delaney!!! That is wonderful she is 5lbs. and still growing and the appts. went better this week. I hope your appt. on Monday goes well and you get some hopeful news. Praying for strength for Delaney and you.

@Casey, the only reasons doctors do a c-section with a CDH baby is to control the environment and guarantee a team of doctors are present or if the baby or mom needs one due to health reasons. A vaginal delivery with a CDH baby will not cause them any more stress and can be helpful to help push out the fluid in the baby's lungs. I ended up with a c-section with my CDH baby, because he couldn't handle the contractions and was in respiratory distress. At the time of delivery, doctors nor I had no clue he would be born with CDH.

where are you delivering? and are you doing a C-section or Vaginal ? Just curious , because i'm doing inutero surgery this coming week to block Gavins trachea, which will give us 4 weeks to let his little lungs grow bringing me to 36 wks; however, I wanted to do a C-section so he doesn't have to go through anymore stress. Are they wanting you to do a C-section or vaginally ? and GOOD LUCK I've been following your stories since you're only weeks ahead of me!!!

YAY! Wonderful news, so glad to hear. I will keep you and Delaney in my thoughts and prayers!! Awesome that you are at 34 weeks...She has to be getting close to the 5 lb mark just in case ECMO is needed!

Sounds like a good appt. and better news. Delaney is a fighter. I think gardening is perfect to do! I love to work in the dirt and my flowers/garden when I am stressed....just something about it that is soothing to the soul. I bet Delaney even likes to garden with you! One day at a time and keep focusing on the positive. I think that is wonderful you are at 34 weeks. Tell that sweet baby girl to keep fighting and sending you much positive energy and thoughts your way. (((HUGS)))

This is exactly what happened to me with Waylon, his cord flow was elevated to the point where one week it was close to flow reversal which means immediate delivery. They do need more checking on and at one point I was have 3x's a week bbp and nst's. I would caution you to de-stress your life and being on bed rest or at least not working and taking it easy will probably be the best for you and the baby. I kept working (teaching) and chased around my 1 year old and didn't rest like I should...When my blood pressure got high it didn't do well on him or the cord flow.

I'm not trying to scare you but Waylon was born at 32 weeks and passed 30 minutes after birth...he was 3lbs 11 oz. So every day that Delaney (love her name by the way) is in there, the better! Take it easy. I started irregular contractions and they got them stopped (after they flew me by jet to Children's Mercy in KC) but delivered him 3 days later...I woke up one morning and started contractions and less than an hour later he was there. I look back and wish I would have rested more not that that would have changed the outcome, but maybe he could have stayed in there longer and grew bigger.

Best of luck to you, I had been wondering how you and baby were doing!

Ask any questions you may have about the cord flow...I learned what to look for when they did the bbp's and I could tell instantly if they were good or bad!

4lbs is good! She is growing! I hate to hear that you have to be monitored more often. I think they mean more the blood flow in the cord, don't they when the relate to high blood pressure in the cord and how the placenta is functioning. It is important to have Delaney checked out more often now, for they will be able to tell if it is time to deliver and if her placenta/cord is no longer working like it should. Just monitor her movements in the weeks to come and if you feel no movement or something abnormal with Delaney to call your doctor. Praying for strength for Delaney and you....(((HUGS)))

Some moms have a baby shower and do the gift card routes and gifts for a having a baby in the NICU (the books to read to her, the music to play for her, a nice bouncy chair, a mobile, stuffed animals, hair accessories, gift cards for you and your family to eat or gas cards, ect...). You can still celebrate this little life you have created, but ask for gift cards or make a registry of some things. That way you can buy what you need when the time is right for your baby girl and you.

I wish I could make your waiting easier, but please know we are praying for strength for Delaney and you in the weeks to come. Tell that sweet baby girl to keep fighting! I think it is great she is growing and doing so well!!! (((HUGS)))

Hi, I think there are pros and cons with having a shower before or after the birth. If you decide to wait until later to have a baby shower, it certainly does not mean that you are being pessimistic. In fact, it is a Jewish tradition and probably in other cultures too, to wait until the baby comes home to have a shower. In my case, I decided to wait because I had an older son who was 3 at the time and I was concerned that it would have been more traumatic for him to have the baby room ready and not end up bringing my baby daughter home. (She's 11 now.) The difficulty with waiting until after the birth to get everything ready is that life gets very busy after the baby is born! So as you can see, there are pros and cons. Just make sure whatever decision you make is a joint decision with your husband. It's really important, especially at this time, to be a team, to act like a team, and think like a team. Delaney is going to be doing her own thing inside of you so there's not much else you can do for her other than getting enough sleep at night, eating healthy, and keeping your dr's appointments. Do you have any hobbies? Do you have friends or family that you can visit with? Is there any volunteer work you can do in your community to keep busy? This is also a great time to do any small projects around the house that you may not have time for later.

One day at a time and focus on the positive......it sounds like precious Delaney is growing and getting stronger! I wish I had some advice to share, but I did not find out about the CDH until the day my son was born. I know I would have been feeling some of the feelings you are experiencing now if I had known beforehand. Keep talking to her, she will draw strength for you. (((HUGS))) to you.

I am sorry that you are having to go through this. I had some panicky days when pregnant with Jacob. But I agree with Marie, one day at a time. I used to sit on the couch, close my eyes and enjoy the feeling of him moving. It calmed me down if I focused. I'm sorry I dont have any other suggestions but I am here if you need to talk or vent.
-Jamie-