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kwilliams

Diagnosed at 20 week Ultrasound. The Journey Begins.

  1. Worn.

    If you haven't yet heard the song "Worn" by Tenth Avenue North, you should make a point to listen to it.
    I am so worn right now. The same day I got the news that Delaney's chromosome tests were normal, my son started throwing up. He had such a bad stomach virus that it took him over a week to recover. Except that as soon as he started to act like himself again, he winds you coming down with a cold. Well, the cold actually turned into pink eye and a double ear infection. Which hes ...
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  2. News

    The doctor called about 45 minutes ago. The Chromosome tests all came back normal. She has a fighting chance now. I feel free and hopeful for the first time in a week. I'm emotional about it, still wanting to cry just from sheer relief. But now her chances of survival have increased again. I wait another week to go back to the doctor and then I WILL take a list of questions. I want to know where we go from here. I know we still have a long road ahead, but I feel her kicks getting stronger everyday ...
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  3. So where am I now?

    Well, Tuesday's appointment did not go as I had hoped. We got more bad news. Her CDH is severe. They can't tell how much lung tissue she has on her left side because the liver is blocking them from being able to see. Also the left side of her heart is quite a bit smaller than her right side. The doctor was unsure if its just because its crowded or if its another defect caused by a chromosome problem this time. So we are doing the DNA testing thing. I was devastated to hear this because of what happened ...
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  4. The Beginning

    January 14th. I was nervous but also very excited and hopeful. I never imagined they would tell me what they did. I had never heard of CDH before. I spent the rest of that day and the following day in a daze, mostly numb and unsure of how to feel. I researched...and then broke down. Three days ago I found out. I have been finding it hard not to cry today. I spent all of yesterday afternoon and evening crying. This is my third pregnancy. My first was unhappy circumstances and I had decided to give ...
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