Blog Comments

Welcome to Cherubs

Welcome to CHERUBS! We are glad that you found us!

Welcome! My son is a 10 year old survivor and so far have not had to go through any more repairs but that is at the top of my list of fears! He's growing fast all of a sudden. I think we all ask at some point in our live "Why me?" It's natural. Our struggles make us who we are, they shape us. They make us depend on others and more importantly make us depend on the Savior.

I'm happy you decided to join us. Hearing from adult survivors gives us all more hope in raising our CDH survivors. It's a hard road for all of us.

Welcome Alejandro to CHERUBS. I am friends with your mom on facebook! Never blame yourself or your parents for this birth defect....I hope someday we all have answers to why this happens and better treatments for CDH. It is still not fair that only 50% of babies born with CDH survive. Have you and your mom participated in any of the CDH research studies. If you haven't and want information, let me know. I am a mom to a son who will be 9 next month! Again, welcome to CHERUBS. I really think having our older CDH survivors posting and helping others, gives so much hope.

Welcome Alejandro!!! It is so good to see some more older survivors! I am a 21 year old survivor myself from CA. I have had many of the same "why me?" questions growing up. I am always here if you ever need anyone to talk to. : ) Again, welcome to CHERUBS! Feel free to explore the forums, they may just answer some questions you have been having.