Uncategorized

Is there any where in Georgia for adults who were born with CDH for adult care and is there any adults who still have or have had repeated surgeries I am looking for any information I can to better understand my own condition to better help my providers help me thank you for any information you can give

Originally Posted by VirginiaP

Hi I am a 35 year old survivor and I find that Amy is correctabout physicias not understanding until they have exasperated every other test they can. I'm sure it's hard for the doctors but it's hard for us to have a normal life until we have been repaired again I sometimes feel like a robot lol but let me encourage everyone please please get your child's surgical notes get all your child's medical records I don't have mine my parents back then no one knew what a L CDH was hardly it's so uncommon

...

Hello this is day 1 for me on here I stumbled across this website while trying to get all of my medical records together for my next surgery I was born on Aug 20th 1979 with a Congenital Diaphragmatic Hernia on the left side as you all know what that means I had my first surgery at Columbus Medical center in Georgia at 2 hours old my left lung was punctured and of course fixed the right lung was a resection and I had like many of you guys pins and surgical sutures to put the puzzle back together.In ...