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My daughter recently went in for her 4th repair. While recovering she encountered a couple of issues. They did an X-ray of her abdomen and discovered a lot of air in her abdomen.

To make a loooong story short, they had to do an emergency surgery and ended up finding an ulcer like hole in her stomach about the size of a quarter. This was patched up and she is now recovering. Again, we are running into issues so she will have a catscan done a little late on today.

The ...

We lost our precious baby girl just 2 1/2 weeks ago on October 25th. It was the saddest day I have ever experienced. She was absolutely beautiful and perfect on the outside. I tell myself that is why God took her after only 7 hours with us. While our doctors told us this was a possibility due to her CDH, we never imagined it would or could happen in the year 2012 as we had so much expertise and technology on our side. At birth it was discovered she virutally had no lung tissue on her left side ...