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We have done the night drip with Miss Shelby and for the last two nights- Shelby has woken up at 6am and was sweating and retching. Today we are in contact with Docs- were going to try and feed Shelby 5 ounces at 2pm. At 10pm, start the night drip and give her 25 ounces. But are waiting to see if we should slow down the pump. I think we should, but always like to hear it from our Doc. I love our ped doc here in our town. He has been so helpful in all Shelby has gone through. ...
I have spent the entire morning trying to find german CDH families online. There is not much out there. I sent out a couple of emails and have to be patient, I guess. That is NOT one of my better qualities! There is an ECMO group, but the email and address is outdated. This is frustrating!! I might have to start up my own website - scary!
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