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Hello , I have a 2 1/2 yr old lil girl, who was born with cdh,its been the most hardest time ever, and feels like its never ending, The hardest challenge at this point is trying to make her gain weight, she is only 21 15o , i still use her gtube at night & she does eat by mouth but not enough to put any calories on her, i give her pedisure 1.5, I just wanted to know if anybody else was having this issue and is so any advice ???

I got the tote bag! Thanks everyone, I wasent expecting it. I wrote in the diary already I plan on giving it to my daughter when she's older. So she can read what I thought at this hard time, read my prayers I've said for her. Yet regarding all this, I'm still very sad. Sad enough to cry for no reason, to cry for the simplest comment made, for the most common song. Little things that seem so meaningless, get to me. I'm always hopeful for the best outcome and it will be the. We found a name well ...