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  1. Final Resting Place

    Sienna was put to rest on last Saturday, ...a day that will live in my memories forever. Our priest said some wonderful things...one thing he kept repeating was "do not let your hearts be troubled" I think alot of parents on here who choose what we chose have troubled hearts. We got Sienna beautiful white roses in a pink vase with Precious Daughter inscribed on the ribbon. The nameplate was difficult to look at. How can I be burying one of my children at 27? Why did this happen to ...
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  2. Ever used this therapy for Pulmonary Hypertension?

    I'm trying to find research done on Inhaled Prostacylin or also known as Iloprost.
    Inhaled Vasodialtor used with nitric Oxide to help treat Pulmonary Hypertension.
    Anyone heard of this?
    Thankyou
  3. Killian as of now..and some of his past

    Just wanted to give a brief of Killians story, i created this while i was still pregnant and then got a bit busy and over whelmed after his birth.. my sister runs a blog site and his FB account www.KillianKayne.blogspot.com and CDH Cherub Killian on FB.
    Killian was born January 2nd he spent 24 hours off of ECMO then he was on ECMO for 6 days, he had his repair surgery while on ECMO. The closed his repair insicion but after a day or so he had extra blood and pressure in his abdomin so they ...