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This has been bothering me, so I figured I would get my thoughts out on this blog because I am not a doctor and these are just my thoughts. I am an attorney, and I never work in absolutes. There is very rarely a yes or no answer to anything, it is always a matter of argument with facts leaning towards one side or the other. I believe that medicine, especially with regard to the proper treatment of CDH is the same way ... or it should be. I am not an expert but I have read countless blogs now, ...

I GUESS I HAVE BEEN FEELING A LITTLE TO HAPPY AND BRAGGING A LITTLE TOO MUCH. THE BABY WAS DOING AWESOME FROM BIRTH, THEN LAST NIGHT HE WENT IN FOR SURGERY AND THEY CALLED TO TELL ME THEY WERE ON THE LAST STITCH OF HIS DIAPHRAGM WHICH WAS THORASCOPIC SURGERY, THEY SAID, IT WAS SMALLER THAN THEY THOUGHT AND HE HAD STOMACH,SPLEEN,SMALL AND LARGE INTESTINES UP IN HIS CHEST AND THERE WAS MORE LUNG THAN EXPECTED AND IT ACTUALLY GOT IN THE WAY, SO WE WENT IN TO SEE HIM AND WE WERE HAPPY AND ON TOP OF ...

mekhaai was born 3/17/10 at 3:12 pm by c-section. He was 8lb 12.1 oz. I will never ever forget the moment he was born, they walked past me with him, he was dripping wet and they paused for second to show him to me and then the started working on him. He was breathing on his own but I didnt know it at the time. I didnt hear him make a sound and they were working on him right in front of me so I could see everything and I was trying hard to listen to them talk, it seemed like forever, I heard ...

I was reading a blog the other day of a CDH angel. It was heart breaking, but the mom said something so beautiful ... she said that before the baby was born, she prayed that if the baby was going to die, to take her quickly. But the baby lived for 37 days and the mom was thanking God for not granting her prayer. She said the days where her baby was in the hospital were some of the best days of her life. It really made me think. The days in the hospital were definitely some of the hardest days ...

My little girl is just the sweetest baby ever ... she has an adorable disposition and has been really healthy *knock on wood* but Man, I wish she would eat more. For the first time I weighed her and she went down in weight. She is often the same and only goes up very, very slowly, but this time she lost=(! We have never been on the growth curve, not even close, and not even for her adjusted age. However, we have also never had a tube since we were discharged. I want to keep it that way and ...