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Today was a day like no other. The morning routine was the same as always. Axel was running around on the floor while Jando slept in late. I was watching an espisode of 16 & Pregnant when Axel made his way towards me. He stands up leans in his head and lays it on my knee and says "MOM, MOM!" I looked down and was taken aback. This little red headed boy that had been only saying "DADA" for the passed few months finally said "MOM." I was so happy I looked up ready ...

Heart beats fast
Colors and promises
How to be brave
How can i love
when i'm afraid to fall
but watching you stand alone
all of my doubt
suddenly goes away somehow
one step closer

i have died everyday waiting for you
darling, don't be afraid i have loved you
for a thousand years
i'll love you for a thousand more

time stands still
beauty in all she is
i will be brave
i will not let anything

...

Sienna was put to rest on last Saturday, ...a day that will live in my memories forever. Our priest said some wonderful things...one thing he kept repeating was "do not let your hearts be troubled" I think alot of parents on here who choose what we chose have troubled hearts. We got Sienna beautiful white roses in a pink vase with Precious Daughter inscribed on the ribbon. The nameplate was difficult to look at. How can I be burying one of my children at 27? Why did this happen to ...

I'm trying to find research done on Inhaled Prostacylin or also known as Iloprost.
Inhaled Vasodialtor used with nitric Oxide to help treat Pulmonary Hypertension.
Anyone heard of this?
Thankyou

Tags: iloprost, prostacylin, pulmonary hypertension

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Just wanted to give a brief of Killians story, i created this while i was still pregnant and then got a bit busy and over whelmed after his birth.. my sister runs a blog site and his FB account www.KillianKayne.blogspot.com and CDH Cherub Killian on FB.
Killian was born January 2nd he spent 24 hours off of ECMO then he was on ECMO for 6 days, he had his repair surgery while on ECMO. The closed his repair insicion but after a day or so he had extra blood and pressure in his abdomin so they ...

Tags: ecmo, nitric oxide, pulmonary hypertension, sildenafil

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