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First appointment of this week is over, and it was good. Actually. Delaney is still passing her nst's with flying colors and is still kicking up a storm. Her right kidney is still enlarged but is not moving up or down which is good. Her stomach is still up in her chest and her heart is still in the same position and squished. None of that has changed for like a month. The only thing that changed is the pressure in the cord went down some, it is now in the upper end of the normal range which is still ...
Yay so thanks to my mother-in-law the city of Palm Beach Gardens , Florida as declared April 19th CDH awareness day!!! We got two copies , so we will be sending one to the North Carolina address!!! taking one step at a time!!!!!!! GOOOO CHERRUUBBBSSS!!!!
I went yesterday for my weekly appointment with the perinatal specialist. Delaney is still doing great and passing all her tests. She is practicing breathing regularly and has good movement and heartbeat even through the contractions I have been having. Her weight isn't really where I wish it was but 4 lbs. at this point is nothing to scoff at. I had several contractions during the testing. They have been getting more frequent and more noticeable as time has progressed. They were coming at regular ...
Hi all , as many members know I am doing a Skydive on April 19th for Cherubs and will be blowing lots of kisses at 10,000 feet x I was just wondering what everyone else had planned to Light up the night in the UK. Once I have landed safely I'm off to join lots of other people & CDH survivor Josh Kenyon for lantern & balloon release . I hope to see lots of picture on the UK Cherubs fb page .
We would love to hear from any CDH families with teenagers. Our daughter Caoimhe a CDH survivor is almost 15:
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