All Blog Entries

:cry: Well I went to get my MRI and ECHO yesterday 12-26 and like amys LHR numbers they did not match up as well. The ultrasound gave us a LHR of 1.6 the first time then 2.0 the second. The MRI gave us a LHR of 1.02.
My doctor kept reassuring me that he is still in good spirits about Drakes outcome.He also said that the liver is down. The only thing up is the stomach a small portion of intestines and some bowl.
My Echo was next. Dr white said that everything was functioning like ...

Just thought you would like to see Drake!
He is so precious!!!!
[img:77092e620d]http://cdhsupport.org/members/weblogs/upload/43/2046560007477495431f3c0.jpg[/img:77092e620d]

Merry Christmas everyone! I hope everyone had a wonderful Christmas day. We spent Christmas eve with Nate's family at his Aunts house which is always nice. We visited Nate's sister and her boys Christmas morning and my family for dinner. We stopped by the cemetery to visit Gabe on the way home. The whole day was very bittersweet. It was wonderful to visit family and show off my growing HUGE tummy... but Gabe was greatly missed. I wish he was here to spoil, here to love, here to hold. Honestly, ...

No changes from the last visit at U of M. Things are still in the same place with heart to the right, stomach, intestines, liver and gallbladder up. I was so worried after the last visit. But the more I talk to people on here, the less worried I have become.

Each baby is so different (I have to admit, I didn't really listen when everyone first told me this). As I read all the different stories and outcomes, you can not go on what has happened to our other Cherubs. There are ...

[color=black:6640bf06ab][/color:6640bf06ab]

Lily Elaine was born on December 15th at 10:48 am.

She is beautiful! She had a wonderful week, so much in fact that they did the surgery today (well, yesterday now)!!
She had been on the lowest settings on her ventilator and medicines and was so stable that they decided to go ahead with it.

We couldn't be happier with all of the nurses and doctors at CHOP. They are a blessing.

At the ...