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We have done the night drip with Miss Shelby and for the last two nights- Shelby has woken up at 6am and was sweating and retching.
Today we are in contact with Docs- were going to try and feed Shelby 5 ounces at 2pm. At 10pm, start the night drip and give her 25 ounces. But are waiting to see if we should slow down the pump. I think we should, but always like to hear it from our Doc.
I love our ped doc here in our town. He has been so helpful in all Shelby has gone through. ...

I have spent the entire morning trying to find german CDH families online. There is not much out there. I sent out a couple of emails and have to be patient, I guess. That is NOT one of my better qualities! There is an ECMO group, but the email and address is outdated. This is frustrating!! I might have to start up my own website - scary!

Hello!

This is my first entry, so I thought I should introduce myself. My name is Crista, I am 32 years old, an American married to a Hungarian living in Germany. I have 3 daughters.

Tabitha is my oldest, she is almost 12. :shock: She had a normal birth, but had immune problems for 4 years and now has asthma and allergies. Other than that she is your regular teenie. :roll:

Julianna is 5. She was a premee (34 weeks) and she had tha awful RSV at 4 months ...

Shelby had her scope this morning and everything looked great. She has some irration by her Mickey-the Doctor said that is why we saw the blood. He is not happy with the sweating and the retching..so tomorrow we will do a gastric emptying x-ray study and see if we can't find something there.
We will spend another night at a hotel and we miss the other girls so. But with gas prices the way they are-we feel it's better to stay here-and tomorrow go home.
Our hope is they find something ...

&lt;P&gt;[color=indigo:6c253eb39d]<b>LITTLE ANGEL BABY GABRIEL ERIC NAVA (18 NOV. 2006- 12 JAN. 2007 AGE: 56 DAYS)</b>&lt;/p&gt;
&lt;P&gt;&lt;center&gt;[img:6c253eb39d]http://cdhsupport.org/members/weblogs/upload/41/20357127804736e228f046b.jpg[/img:6c253eb39d]&lt;/center&gt;&lt;/p&gt;

&lt;P&gt;I have dreamt of the day that my dear sweet little Grandchildren would come! From the moment I heard my daughter tell ...