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Hi I'm new to this but I have a 5 month old left side cdh he doing great but we have recently ran into some feeding issues . He has a g tube so we can feed him even when he want take his bottle thank goodness . He use to take his whole bottle no problem we only used tube at night for night feeding while he sleeps to help him grow but the past 3 weeks he has stopped taking them we are tubing all his bottles all the doctors will say is acid reflux but he doesn't act like that's what it is .... But ...

Hi, I am 16 years of age with CDH, I am from New Zealand and would like to know if there is anyone else in NZ with this condition?
Ella

Hi everyone. I am a parent to a left congenital diaphragmatic hernia survivor. My son Marcus Anthony Velasquez is now 10. He only had a 20% chance of living but he beat all the odds. He was on ECMO for 13 days. It was the scariest time in my life. He stayed almost three months at the Driscoll Childrens Hospital in Corpus Christi, Tx.

So excited to be apart of the club!

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Well. Ive made it thur my 1st 4th of july without you. As well as, Halloween, thanksgivin, and christmas. Now ill make it thur new years without you. Its hard. Im not celebrating your 1st holidays,but grieving these holidays. Im so torn. Im trying to make it One more day, but the pressure of these holidays make it hard.