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After 13 years of ups and downs, I'm finally going to post GOOD news! My son made the school golf team!!! I'm so happy for him--he's finally able to play a sport. In school golf, the kids are required to carry their clubs and walk the course. Due to John's severe pulmonary hypertension, his cardiologist wrote a letter to the athletic department to allow John to ride a golf cart for his matches. We were thrilled! But guess who has to drive that cart---ME! Yikes! I know nothing about golf--hee, ...
Ethan is 4 years 9 months old has had a wonderful summer. We went to our family reunion over the 4th of July and he enjoyed playing with all the other kids. He even rode his big wheel by himself for the first time. We went to Panama City Beach this past week. He was scared of the water at first, but once he got in, you couldn't keep him out of it. He kept asking me to take him out in the water and float around with him. I did and we both enjoyed it so much. He just kept telling me he ...
July/August Update: So we made the long walk down the hallway to the doctor’s office to discuss next steps since our 2nd son had just been diagnosed with CDH. There was a 98% chance of this not happening again…but it did. We knew a lot more about CDH than we did 3 years ago, but every case is so different. Last time we found out at 37 weeks, so we really had no options, tests to take, or choices to make. This time we had 20 weeks to worry, stress, and pray. Plus this ...
Yesterday was suppose to be the day that we brought our Baby boy home but Sunday Morning at 3 am. Dr. Kays got a call to the hospital because of Braxton's Behavior. The practitioners could not find out what was wrong. When Dr. Kays got there he called me immediately to give consent to surgery. He thought that Braxton had bowel obstruction. He said they may have to remove bowels or they may not. I gave consent and Dr. Kays said that he would call me as soon as it was over. A few hours later, he called ...
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