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Hi my name is Angie and I am from Phoenix, AZ. My grandson was born with LCDH. He was born at 33 weeks and had surgery at 10days old weighing only 3lbs. My grandson is now 14months old and although all looks good with his CDH battle I now have a battle with CPS. He was taken from my daughter as soon as he was released from the hospital at 3months old. He is in a foster home with a nursing student who has now made it a mission to adopt him and has been reporting that when we visit him we are not ...

Ricky's anatomy doesnt allow for a GJ feeding tube. So he just has a G tube, but it isnt working to well. He has horrible horrible reflux. And along with that he keeps spitting up, but Ricky is a strong little boy. nd continues to smile. i noticed he's very alert, and always looking at his fishy mobile. WELL the surprise is that he has MRSA, so everytime we walk into his room we have to wear a gown and gloves. It sucks alot. BUt i know everything will be oay. Just being tested by the big man upstairs. ...

Being Danish, HC Anderson is like a cultural thing for me. I found this poem and couldn't help thinking about all the cherubs in heaven.



The Dying Child

By Hans Christian Andersen.

Mother, I'm tired, and I would fain be sleeping;
Let me repose upon thy bosom sick;
But promise me that thou wilt leave off weeping,
Because thy tears fall hot upon my cheek.

Here it is cold: the tempest raveth madly; ...

Well so far, my son has some break down of the skin and some blisters around his trach because of the spit ups he has that slides to the neck. My poor little man, he seems to cringe when looking at the site, also seems to cry or get fussy when doing trach care. How i wish i can switch places, but i think all mothers would. How can such a small little innocent baby be put through so much?I alwqays seem to ask myself these types of questions. But my son is here another day, close to his next surgery, ...

So im new to this blog stuff. But my name is Jasmin i am 16 years old, and when my son was born me and my boyfriend found out he had CDH. We didnt know what thi meant or what it was! Didnt even know things like that even existed. But yeah my son went on to fight this difficult battle, at time it seemed as if he was going to lose, but my son is a fighter nd he didnt let CDH win. So far he will be 3 months tomorrow. on July 18th he will get hi GJ tube in, so thats what we're waiting on. With so much ...