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My son has been having oral aversion. So on April 2, he will be getting a g-tube. One of the doctors told me that he would be able to go home a few days after. It will be great to have him home but, I am nervous about it, too.

I so wish I could participate April 19th in the parade ... unfortunately, and fortunately Gavin , and I are going to go under tracheal occlusion surgery! so we'll be in the hospital on bed rest sending our love, and pride to all of our other CDH family, and friends!!!! XO

Okay so this is the calm before the storm!! Tomorrow Chris, and I go to miami to visit Gavins surgeon. April 10th I have my glucose testing, April 14th my baby shower, the 16th we're going to Miami again to see if everything is okay , and ready for surgery, April 18th is my inuterual surgery, and then bed rest for 10 weeks until baby Gavin is strong enough to meet the world!!! Kind of getting a little anxious, because it's literally right around the corner... I really pray that the surgery goes ...

February 15 was suppose to be the best day of my life but instead it was the worst. My son was born at 1:03am and passed about 9 hours later. I was able to get out of the hospital in time to hold him and say goodbye. My sweet angle passed in my arms after his father and I told him it was ok he didn't need to be in pain. I feel like he waited for me to get to Children's before he let go.
Since his passing I have found it hard to show the love and attention my other son needs and deserves. ...

I would like to start off by saying hello. I am Alejandro Alva and I am a proud survivor of CDH for 18 years. For years, I was angry and wondering why out of all people in the world why I had to suffer through this. Since my birth, I had to undergo six surgeries (three repairs and closures) and rely on oxygen tanks and feeding tubes. It was a mystery to both me and my mother, how could this happen? My mother never smoked and never drank, it also didn't appear to be genetic. In the past two years, ...