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Hello, My name is Shawnay. I had an ultrasound yesterday confirming that our son has CDH. I am 35 Weeks pregnant so this is all happening very fast. The reason for the late diagnoses is because my OBGYN never ordered an ultrasound after we found out the sex at 15 wks. I requested a new doctor and she set us up for one right away. Good thing. We are set to go to The Fetal Care Center in Cincinnati, Ohio the beginning of next week to do further testing and meet with our care team. We are still trying ...

Damion is doing great, no complications or surgeries since he was a couple of weeks old. Damion has been in preschool since he was 3 going on 4 so this is his second year and he is doing great. I had a speech specialist test him because he is tongue tied and he had no problems that they were concerned with. My son amazes me everyday and everyday I think will he have to have another surgery because he is growing and getting so big but still no surgery and what concerns me is why is it that he is ...

My family of three recently found out our 4th has CDH. We went in for a routine 20 week check. We were informed that our daughters heart was pushed near her right lung in the right chest cavity.
We were sent to Avera Maternal Fetal Medicine in Sioux Falls S.D.. They shared with us our diagnosis and and some of our options. We are scheduling a meeting with a pediatric surgeon sometimes soon. The doctors said they won't be able to tell the severity until later in pregnancy.

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well it is now Jan 27 2017 and Mr Brantley is over a year old and walking. Sitting back and watching him grow is a blessing but it takes me back to memeories of his mother Angel maybe it is just me but having a older son Shane and he has 2 children Kendall nd Noah I compare them to him. So watching Brantley grow i remember Angel at his age she was so far behind him. I know that the time she spent in the hospital set her back with many things and she did catch up with everything but the differences ...

Hello whoever is reading this.

My name is Sandra and I am a proud mother to a CDH angel, my daughter Julia. Julia passed away after 22hours of being on this earth. She passed away in April and these passed 8 months have been so difficult for my family and I but we are so hopeful for the future.

We found out a couple weeks ago that I am pregnant and expecting our second child (Julia was our first). It is hard not to think of what can go wrong, but I know we have to ...