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My daughter recently went in for her 4th repair. While recovering she encountered a couple of issues. They did an X-ray of her abdomen and discovered a lot of air in her abdomen.

To make a loooong story short, they had to do an emergency surgery and ended up finding an ulcer like hole in her stomach about the size of a quarter. This was patched up and she is now recovering. Again, we are running into issues so she will have a catscan done a little late on today.

The ...

We lost our precious baby girl just 2 1/2 weeks ago on October 25th. It was the saddest day I have ever experienced. She was absolutely beautiful and perfect on the outside. I tell myself that is why God took her after only 7 hours with us. While our doctors told us this was a possibility due to her CDH, we never imagined it would or could happen in the year 2012 as we had so much expertise and technology on our side. At birth it was discovered she virutally had no lung tissue on her left side ...

Anna is now nearly 5 years old in January and not on high calorie milk she still is slim compared to her class friends but now i have my social worker expressing concern because of her size and i told him about her condition that she was born with and that this is something that happens to children born with CDH. Not sure if he believes me but am so stressed and worried now as Anna does have a good appetitie although at tea time it is a struggle to get her to eat most times as she is tired. Even ...

I am at 39 weeks. Baby seems to be comfortable just chillin inside me and that is fine. I am progressing but slowly. I am completely thinned out, station -2 and finger tip dilated (as of 10-30-12). I had two non stress tests last week that came back fine. I will have a check up on 11-6-12. We have been at the Ronald McDonald house near the hospital for almost two weeks now. Baby's weight gain has slowed. Estimated at 6lb 2oz on 10-22-12. We expected around 7lb by then. I am glad we are near the ...

I was wondering what it entailed to start a CDH walk in my area, if its even possible. I live in central NY and would like to do this in honor of my daughter Taylor. any info would be great! thanks!!