All Blog Entries

My baby girl has been doing good at home, she is quite picky at what she wants & when she wants it. She is one popular little girl so many visits even thought Ive said no visits LOL. Amairani or how everyone started calling her "Nani" is starting to only want the breast which is fine with me, anything is better then nothing right. Nani so big wearing 6-9 months clothes, when people come & visit her they expect a newborn haha this child is not close to it. Second there amazed how ...

This is my first blog ever in my whole life.
A month ago today I had my first baby and never thought we would make it this far. Jagger was diagnosed with CDH during the 5th month of my pregnancy. My doctors lead me to believe that this was an easy repair/problem to deal with. They said that after Jagger was born that he would have his surgery and we (Jagger and I) would be home within that week. Obviously my doctor's/specialists were/are idiots. Anyway, it has been three weeks since Jagger's ...

Well Cooper has been in this world for 2 weeks today, and this little boy is a fighter. His repair surgery went well and he is now off ecmo. He had to have 3 surgeries to wash out his belly bc it had a collection of blood, but he is doing so well now he is off his blood pressure meds (except for dopamine but it is only at 2). His ventaliator is turned down to 60% and he is even getting some breastmilk thru a feeding tube. He has came so far and I am so so happy praying for many more good days!!! ...

Today I found myself reading blogs about cancer, and finding that there were more similarities than differences to Anya’s diagnosis. True, my life is not at stake, but my child’s is, and there are so many of the same emotions swimming in my head. Everything going on now reminds me of when my Mom was diagnosed with cancer when I was in high school.
The first is just disbelief- I have suffered through so much in my life, that this is something I had never prepared for. Losing your mother at ...

Today went blessedly fast. I am such an odd place.
The best I can explain is that I have given Anya up to God. I haven't given up on her, but I no longer worry if she will die, even though I don't want her to. If she has a chance at life, if Dr. Kays thinks she has a chance at life, we will give her that chance. If not we will lovingly let her go.
I am excited about the consult at Shands but full of forboding about it as well. I am worried that we will decide to go down there and we ...