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My son was born with a Left Congenital Diaphragmatic Hernia in January of this year. He was placed on a vent, then an occilator and then ECMO for 17 days with nitric oxide. He had his repair done on day 2 on ECMO he was very critical they doctors gave him less than a 10% chance to survive. Now he is 9 months old he is in the hospital now in the PICU before we left her in April to go home the doctors thought that he might have reherniaed on that left side. We came for a cough on Monday of last ...

I am not very technologically savy, so I cannot figure out to delete a blog entry that hurt a very good friend of mine. I wrote the blog in a fit of sadness, devastation and fear, never imagining that this friend would read it. I joined this site to connect to families who know exactly how my husband and I feel. This site has been a huge blessing and the women I have met and connected with all hold a very special place in my heart! I never expected others to read it. The truth is, it is impossible ...

Bre'ahna was admitted back to Shands last night.
She has been coughing and retching really bad for a few days.

Diagnosis is left lung pneumonia, which is her bad lung.
Discharged with heavy doses of antibiotics. Hope and pray that this will do the trick. lol... been there done that, back to hospital next day....... I don't like seeing residents with my angel, I want my doctors, but being a teaching hospital thats what you get. I'm getting frustrated because my baby ...

My little Cherub,
I wanted to write you to tell you how much your mommy and daddy love you. You will never
know the days and nights that we have prayed and cried for you. We are so overjoyed with your soon arrival. Its coming up very soon. I don't know whato expect but I know one thing. You will be loved so much and get plenty of kisses and hugs when
you get here.
As your mommy I want you to know that carrying you these last few months have been a pleasure and a pure ...

Ethan had a great week. He has not thrown toys at Christa for a while so maybe our little talk worked. They are both going for a flu shot on Wednesday. My husband will be taking them. I am getting mine this week as well. They offer them at no charge at my work. Ethan said some new words this week. They had superhero week at therapy and he says "Superman" and "hat". I'm trying to get him to say "Trick or Treat". We are taking him Trick or Treating even though ...