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I got the tote bag and goodies this week. I didnt expect that at all. I was totally suprised. I knew that I hadn't ordered anything and was so overcome with emotion when I opened it up. Thank you for sending it to me. I can't say enough how much I appreciate this website and the way that I have been able to connect through the people here. Its great and its definitely a blessing.
We had an appointment on Tuesday, 9/27 for another ultrasound. They are still amazed that his stomach and other ...

Hello , I have a 2 1/2 yr old lil girl, who was born with cdh,its been the most hardest time ever, and feels like its never ending, The hardest challenge at this point is trying to make her gain weight, she is only 21 15o , i still use her gtube at night & she does eat by mouth but not enough to put any calories on her, i give her pedisure 1.5, I just wanted to know if anybody else was having this issue and is so any advice ???

I got the tote bag! Thanks everyone, I wasent expecting it. I wrote in the diary already I plan on giving it to my daughter when she's older. So she can read what I thought at this hard time, read my prayers I've said for her. Yet regarding all this, I'm still very sad. Sad enough to cry for no reason, to cry for the simplest comment made, for the most common song. Little things that seem so meaningless, get to me. I'm always hopeful for the best outcome and it will be the. We found a name well ...

today chloes oxygen came off!! we are waiting on her to drink full bottles for her to come home now! i am sooo excited

Keep your family and friends updated on your cherub's progress at a site that can also give them information on CDH and advice on how to help you through this roller coaster.