All Blog Entries

Hi!:)
7 June 2010 my daughter it has been born with CDH. We are spent in hospital four months...
In Poland is equipment not enough... and does not have fundation CDH... My daughter has year..:) Mam nadzieję że macie tłumacza w wyszukiwarce ponieważ słabo znam angielski i nie chce robić błędów. Natomiast chcę żebyście zrozumieli naszą historię... Mikalela po urodzeniu spedziła miesiąc i tydzień na oddziale ...

Today I am praying hard for Clara. Sweet baby girl, with a beautiful name, fighting for her life. For the last three weeks I have been following her story (she is in North Carolina) as well as Pearson's who is at Shands Hospital in Florida, where we were treated. Both babies were born around the same day. Both went on ECMO shortly after birth. Both had to have their surgeries on ECMO. Pearson has Right-sided like Dakota, Clara is left-sided. When I first started following them and praying ...

It's been awhile since my last blog but things have changed alot since then. I am back to work now and it's a difficult adjustment. When I left work in July I thought I would be coming back while my baby was at home, and so did everyone I work with. It is hard when people see me and ask how the baby is and then they feel bad because they didnt know. Trying to reassure people that we are doing better is tiring. I miss you Riley
xoxox

Hi there everyone. Yesterday was one of the toughest days so far. It took all of my energy to do anything. I am hoping today i will be able to push on through and have a better day. I miss Riley everyday and I will always miss him.
Love you my little dude. xoxox

[img:3f58927bb7]http://cdhsupport.org/members/weblogs/upload/123/977217614d7631da0d328.png[/img:3f58927bb7]

This is my story.....
I'll never forget the day I found out my sweet baby boy Riley had a left sided CDH. I was 18 weeks pregnant and I was so excited to find out if I was having a girl or a boy. To my joy they confirmed he was a boy, and then they sent the radiologist in to speak with me. I was scared but had no idea the journey I was in for.
I was told briefly what the condition was but was very confused so I did what anyone in my position would do, I googled it. To my surprise a ...