Stay Connected
[color=darkblue:0dacf26da1][/color:0dacf26da1]this is my first entry here on CHERUBS. I am the mother of a beautiful baby boy(riley). He had a severe left sided CDH and was diagnosed in utero. He passed away when he was six weeks old. I miss him terribly but I am coping with life these days. trying to stay positive.
10 MONTHS AND DOING GREAT!!!!MY OLDER DAUGHTER WAS ASSKED TO DO A RESEARCH REPORT AND SHE TOLD THE TEACHER SHE WANTED CDH. SHE SAID THE TEACHER'S EYES WATERD AND THEN SHE SAID HER NEPHEW HAD CDH AND LIVED 16 PRECIOUS DAYS. I THINK AT THAT MOMENT MY DAUGHTER REALIZED HOW LUCKY WE ARE.
We finally did it she graduated Dec 17 2010 Now I only hope she decides to go on to school her boyfriend joined army and left jan 3 so she not a happy camper right now but it'll get better.
I don't know how long I will do this for, but this is my second year and I still find myself reliving Dakota's days in the hospital, especially momentous days. I have been doing it like crazy the last week .... not even trying, but my mind just flashes back to emotions of that time. This is going to be a ramble, but I need to get it out. Of course on Dakota's birthday, I relived the stress of her birth, and saying goodbye to her ... but I also remembered how I was eerily calm that night. I remember ...
It is not fair in any way!!!! I hate when any angel is lost to CDH. I think a baby lost after only an hour of life, or a day, or even in the womb, is a huge tragedy. The parents and family loses all the hopes and dreams for their angel and it breaks my heart. But I tell you, the loss of an angel who has already been home haunts me even more. The stories I hear where a baby survives for a month at home, or a few months or even a year or more, terrify me and devastates me to the core. I think ...